Overview
- Editors:
-
-
Andrew N. Lin
-
Laboratory for Investigative Dermatology, The Rockefeller University, New York, USA
-
D. Martin Carter
-
Laboratory for Investigative Dermatology, The Rockefeller University, New York, USA
Access this book
Other ways to access
Table of contents (23 chapters)
-
Extracutaneous Manifestations and Their Management
-
-
Special Management Considerations
-
Front Matter
Pages 221-221
-
- Kenneth O. Rothaus, Michael J. Pagnani
Pages 223-227
-
-
- Virginia P. Sybert, Karen A. Holbrook
Pages 235-251
-
- Rebecca L. Lipnick, Barbara S. Stanerson
Pages 252-260
-
- Donna Tesi, Andrew N. Lin
Pages 261-266
-
- Andrew N. Lin, D. Martin Carter
Pages 267-280
-
- Dorothea Caldwell-Brown, Sheila Gibbons, Migdalia Reid
Pages 281-294
-
Back Matter
Pages 295-302
About this book
Because skin blisters are the initial manifestation of epidermolysis bullosa (EB), patients invariably present to the dermatologist for diagnosis and treatment. However, EB is a systemic disease whose management requires input from clinicians in virtually all fields of medicine, including pediatri cians, surgeons, dentists, gastroenterologists, hematologists, otorhinolaryn gologists, dietitians, and physical therapists, to name a few. Because EB is a rare disease, few clinicians are familiar with it, and many recoil at the pros pect of caring for individuals covered with blisters caused by a disease they know little about. For patients, insult is thus added to injury and they feel abandoned, neglected, and frustrated. One way to remedy this deplorable situation is to provide clinicians with a compact source of information de tailing the principles of EB diagnosis and treatment. This text seeks to fulfill this role. From 1986-1991, The Rockefeller University Hospital has been the co ordinating center of the National EB Registry. Supported by The National Institutes of Health, this Registry consists of four university centers* commit ted to collecting clinical data concerning diagnosis, treatment, and epidemio logy on all American EB patients. As of April 1992, nearly 1,799 EB patients have enrolled nationwide. The Registry is now in its second five-year phase of operation.