Overview
- Editors:
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Caprice Knapp
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, Department of Health Outcomes and Policy, University of Florida, Gainesville, USA
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Vanessa Madden
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, Department of Health Outcomes and Policy, University of Florida, Gainesville, USA
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Susan Fowler-Kerry
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, College of Nursing, University of Saskatchewan, Saskatoon, Canada
- Description of pediatric palliative care in 23 countries
- Program development and implementation
- Pediatric palliative care policies and legislation
- Barriers and enablers of pediatric palliative care
- Description of children who need pediatric palliative care
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Table of contents (25 chapters)
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Overview
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- Caprice Knapp, Vanessa Madden, Lindsey Woodworth, Susan Fowler-Kerry
Pages 3-13
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Africa
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- Fred Chiputula, Zoe Palmer
Pages 17-26
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- Joan Marston, Busi Nkosi, Annanda Bothma
Pages 27-39
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- Julia Downing, Jane Nakawesi, Rose Kiwanuka
Pages 41-64
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- Jenny Hunt, Eunice Garanganga
Pages 65-78
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Asia
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- Colette Cunningham, Gayane Tovmasyan, Narine Movsisyan
Pages 81-90
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- Lulu Mathews, K. Suresh Kumar
Pages 91-108
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- Ednin Hamzah, Geok Lan Kuan
Pages 109-126
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- Michael Silbermann, Maha Arnaout, Hany Abdel Rahman Sayed, Mohamed Sedky, Mohammad El-Shami, Myriam Ben-Arush et al.
Pages 127-159
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- Saleh Al-Alaiyan, Mohammad Zafir Al-Shahri
Pages 161-168
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- Mei-Yoke Chan, Noor Aishah Abdul Rashid
Pages 169-183
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Europe
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Front Matter
Pages 207-207
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- Christian Loffing, Dina Loffing, Sabine Kraft, Martina Göß, Melanie van Dijk, Tobias Schellenberg et al.
Pages 209-237
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- Colette Cunningham, Philip J. Larkin
Pages 239-250
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About this book
The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.
