Comparative Issues in the Governance of Research Biobanks
Property, Privacy, Intellectual Property, and the Role of Technology
Editors: Pascuzzi, Giovanni, Izzo, Umberto, Macilotti, Matteo (Eds.)
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- About this book
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In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.
- Table of contents (19 chapters)
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Introduction: A Law and Technology Approach to the Law of Biobanking
Pages 1-7
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Research Biobanks Meet Synthetic Biology: Autonomy and Ownership
Pages 11-39
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Regulating Biobanks: Another Triple Bottom Line
Pages 41-62
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Health Insurance, Employment, and the Human Genome: Genetic Discrimination and Biobanks in the United States
Pages 63-75
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Ownership of Biomedical Information in Biobanks
Pages 77-86
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Table of contents (19 chapters)
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Bibliographic Information
- Bibliographic Information
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- Book Title
- Comparative Issues in the Governance of Research Biobanks
- Book Subtitle
- Property, Privacy, Intellectual Property, and the Role of Technology
- Editors
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- Giovanni Pascuzzi
- Umberto Izzo
- Matteo Macilotti
- Copyright
- 2013
- Publisher
- Springer-Verlag Berlin Heidelberg
- Copyright Holder
- Springer-Verlag Berlin Heidelberg
- eBook ISBN
- 978-3-642-33116-9
- DOI
- 10.1007/978-3-642-33116-9
- Hardcover ISBN
- 978-3-642-33115-2
- Softcover ISBN
- 978-3-642-43933-9
- Edition Number
- 1
- Number of Pages
- VIII, 339
- Number of Illustrations
- 7 b/w illustrations
- Topics
