Transitioning Care from Pediatric to Adult Pulmonology

1. Front Matter

   Pages i-viii

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2. General Principles of Transition Care

   1. Front Matter

      Pages 1-1

      PDF

   2. Development of Healthcare Transition Policy and Concepts

      • Cecily L. Betz

      Pages 3-26

   3. Transition Research: Approaches to Measurement and Outcomes

      • Cory Powers, Cynthia D. Brown

      Pages 27-43

   4. Training Trainees: Creating a Better Workforce to Support Transition Care

      • Rachel Quaney, Stephen Kirkby

      Pages 45-58

3. Psychosocial Considerations in Transition

   1. Front Matter

      Pages 59-59

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   2. Developmental and Psychosocial Challenges for Self-Management and Maintaining Adherence to Chronic Therapies

      • Jennifer L. Butcher

      Pages 61-74

   3. Parents in Transition: Moving from Providing to Supporting Roles

      • Karen Lowton

      Pages 75-88

   4. Using a Social-ecological Framework to Guide Transition

      • Pi Chun Cheng, Michael M. Rey, Dava Szalda, Lisa A. Schwartz

      Pages 89-102

4. Best Practice Recommendations and Transition Outcomes in Specific Pulmonary Conditions

   1. Front Matter

      Pages 103-103

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   2. Providing Care for a Changing CF Population

      • Katherine Alex Despotes, Jennifer L. Goralski

      Pages 105-116

   3. Transition Care for Adolescents and Young Adults with Neuromuscular Disease and Chronic Pulmonary Care Needs

      • Kathleen S. Irby, Jeanette P. Brown

      Pages 117-134

   4. Establishing a Medical Home for Asthma and Other Obstructive Lung Diseases

      • Nadia L. Krupp, Sarah E. Bauer

      Pages 135-144

   5. Pulmonary Hypertension: Transition Challenges in the Current Therapeutic Era

      • Jordan D. Awerbach, Wayne J. Franklin

      Pages 145-165

5. Back Matter

   Pages 167-169

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This book addresses an unmet need in the care of adolescents and young adults with lung disease. The increasing survival of young adults with childhood-onset pulmonary conditions is a testament to major advances in treatments and health care delivery. With the increase in survival of children with chronic respiratory conditions, there is a need for formalized transition programs to integrate adolescents and young adults into the adult model of care. This book helps fill gaps in knowledge to best achieve that initiative.

This book takes a comprehensive approach to transition care in pulmonary medicine by satisfying the following objectives: 1) Understand the barriers and developmental challenges in the transition from pediatric to adult care for patients with chronic childhood-onset pulmonary disease; 2) Learn about successful evidence based transition models in pulmonary disease populations, focusing on key process and outcome measures for success; and 3) Develop knowledge to design, implement, and measure a transition program based on evidence and expert opinion.  In the first section, the book outlines general principles of transition care that are applicable to all patients regardless of underlying disease process and describe best practices for performing necessary research in transition care.  In the second section, the book explores psychosocial factors known to play a role in affecting transition outcomes, including parental support, psychological development, and socioeconomic factors.  In the final section, transition outcomes and best practices in specific respiratory diseases are outlined.  With a focus on populations with chronic pulmonary disease, this book highlights the challenges and barriers of transition, reviews model systems to understand the essential components of a transition program, and provides evidence-based information to navigate these barriers and achieve successful outcomes during transitionto adulthood.


This is an ideal guide for pediatric and adult pulmonary providers caring for patients who are transition age, as well as multidisciplinary care team members who work with these providers in care models on transition projects to improve the transition process. 

• transitional care
• pediatric pulmonology
• adult pulmonology
• health care transition
• cystic fibrosis
• neuromuscular disease
• asthma
• pulmonary hypertension

• Division of Pulmonary, Critical Care,Occupational, and Sleep Medicine, Indiana University School of Medicine, Indianapolis, USA

  Cynthia D. Brown

• Department of Pulmonary, Critical Care, and Sleep Medicine, Wyoming Medical Center, Casper, USA

  Erin Crowley

Dr. Brown is the director of the Adult Cystic Fibrosis Program and Associate Professor of Pulmonary and Critical Care Medicine at Indiana University.  She is an experienced clinician in the care of adults with CF, including transitional care, and has expertise in the conduct of clinical trials.  She sits on the Steering Committee for the CF Therapeutic Development Network, which provides oversight of clinical trials across CF Foundation-accredited clinical centers. She also mentors Dr. Crowley in the conduct of her research in the transition of CF patients from pediatric to adult care. 

 

Dr. Crowley was the associate director of the Adult Cystic Fibrosis Program and Assistant Professor of Pulmonary and Critical Care Medicine at Indiana University. Since the conception of this book, she has moved to Wyoming where she is now Clinical Lead in the Pulmonary Clinic. She plans to use her expertise in adult and pediatric medicine to provide pulmonary care to a range of patients in the state of Wyoming. She has a specific research focus on how social determinants of health affects outcomes in CF, specifically in individuals in transition from pediatric to adult health care.  

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