Pediatric and Congenital Cardiac Care

1. Front Matter

   Pages i-xxii

   PDF

2. Introduction

   1. Front Matter

      Pages 1-1

      PDF

   2. Introduction

      • Paul R. Barach, Jeffrey P. Jacobs, Peter C. Laussen, Steven E. Lipshultz

      Pages 3-8

   3. Introduction: The History of Statistics in Medicine and Surgery

      • Eugene H. Blackstone

      Pages 9-25

   4. Introduction: Using Data to Drive Change and Improvement: The Legacy of Florence Nightingale

      • Kathleen Mussatto, Maryanne Kessel

      Pages 27-29

   5. Introduction: Quality Improvement and Databases in the Context of Professionalism

      • John E. Mayer Jr.

      Pages 31-32

3. Nomenclature and Taxonomies

   1. Front Matter

      Pages 33-33

      PDF

   2. Nomenclature for Congenital and Pediatric Cardiac Disease: Historical Perspectives and the International Pediatric and Congenital Cardiac Code

      • Rodney C. G. Franklin, Jeffrey P. Jacobs, Otto N. Krogmann, Marie J. Béland, on behalf of the International Society for Nomenclature of Paediatric and Congenital Heart Disease

      Pages 35-50

   3. Defining Terms in Lists of Nomenclature

      • Henry L. Walters III, Steven D. Colan

      Pages 51-61

   4. Illustrating Terms in Lists of Nomenclature

      • Jorge M. Giroud, Jeffrey P. Jacobs, Diane E. Spicer, James D. St. Louis

      Pages 63-74

4. Databases

   1. Front Matter

      Pages 75-75

      PDF

   2. Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Cardiac Surgery

      • Jeffrey P. Jacobs

      Pages 77-125

   3. Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Cardiology

      • William B. Drake II, Richard E. Stroup, Allen D. Everett

      Pages 127-140

   4. Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Anesthesia

      • David F. Vener

      Pages 141-153

   5. Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Critical Care

      • Michael G. Gaies, Howard E. Jeffries, Randall Wetzel, Steven M. Schwartz

      Pages 155-162

   6. Early Database Initiatives: The Fyler Codes

      • Steven D. Colan

      Pages 163-169

   7. The Academic Database: Lessons Learned from the Congenital Heart Surgeons’ Society Data Center

      • Christopher A. Caldarone, Jeffrey A. Poynter, William G. Williams

      Pages 171-184

   8. Clinical Versus Administrative Data

      • Sara K. Pasquali, J. William Gaynor

      Pages 185-191

   9. Databases for Pediatric Cardiac Transplantation: The United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) and the Pediatric Heart Transplant Study (PHTS)

      • Ryan R. Davies

      Pages 193-210

   10. Databases for Extracorporeal Membrane Oxygenation and Ventricular Assist Devices

       • David S. Cooper, David L. S. Morales, Megan del Corral, Matthew L. Paden, Ravi R. Thiagarajan

       Pages 211-218

There are growing questions regarding the safety, quality, risk management, and costs of PCC teams, their training and preparedness, and their implications on the welfare of patients and families. This innovative book, authored by an international authorship, will highlight the best practices in improving survival while paving a roadmap for the expected changes in the next 10 years as healthcare undergoes major transformation and reform. An invited group of experts in the field will participate in this project to provide the timeliest and informative approaches to how to deal with this global health challenge. The book will be indispensable to all who treat pediatric cardiac disease and will provide important information about managing the risk of patients with pediatric and congenital cardiac disease in the three domains of: the analysis of outcomes, the improvement of quality, and the safety of patients.

• Aristotle Complexity Score
• Cardiac Catheterization Databases
• Cardiac nomenclature
• Cardiology
• Congenital Heart Disease
• Outcomes analysis
• Patient Care
• Pediatrics
• Quality of Life

From the book reviews:

“The book emphasizes the importance of past, present, and future longitudinal recordkeeping for pediatric and congenital cardiac disease. … The audience includes any individuals interested in pediatric and congenital heart disease, from physicians to statisticians to medical historians. … This is an excellent reference for any practitioner involved in pediatric or congenital heart disease.” (Shawn Ragbir, Doody’s Book Reviews, March, 2015)

• School of Medicine,, University of Oslo, Oslo, Norway

  Paul R. Barach

• Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Division of Cardiac Surgery, Department of Surgery, Johns Hopkins All Children’s Heart Institute, All Children’s Hospital and Florida Hospital for Children, Johns Hopkins University, St. Petersburg, Tampa, Orlando, FL, USA,, Baltimore, USA

  Jeffery P. Jacobs

• Wayne State University, Detroit, USA

  Steven E. Lipshultz

• The Hospital for Sick Children, Toronto, Canada

  Peter C. Laussen

Policies and ethics