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The Ethics of Genetic Screening

  • Book
  • © 1999

Overview

Editors:
  1. Ruth Chadwick

    1. Centre for Professional Ethics, University of Central Lancashire, Preston, Lancashire, UK

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  2. Darren Shickle

    1. School of Health and Related Research, University of Sheffield, Sheffield, UK

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  3. Henk Have

    1. School of Medical Sciences, Catholic University of Nijmegen, Nijmegen, The Netherlands

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  4. Urban Wiesing

    1. Medical Ethics, Eberhard-Karls University, Tübingen, Germany

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Table of contents (21 chapters)

  1. Front Matter

    Pages i-xvi
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  2. The Wilson and Jungner principles of screening and genetic testing

    • Darren Shickle
    Pages 1-34

  3. Genetic screening, information and counselling in Austria

    • Gertrud Hauser
    Pages 35-41

  4. The Belgian perspective on genetic screening

    • Kris Dierickx
    Pages 43-53

  5. Thalassemia prevention in Cyprus

    • Panayiotis Ioannou
    Pages 55-67

  6. Some developments in genetic screening in Finland

    • Veikko Launis
    Pages 69-74

  7. Genetic screening: Ethical debates and regulatory systems in France

    • André Boué
    Pages 75-80

  8. Screening in Germany: Carrier screening, pre-natal care and other screening projects

    • Traute Schroeder-Kurth
    Pages 81-87

  9. Population screening in Greece for prevention of genetic diseases

    • Caterina Metaxotou, Ariadni Mavrou
    Pages 89-93

  10. Ethics and genetic screening in the Republic of Ireland

    • Dolores Dooley
    Pages 95-104

  11. Genetic screening in the Netherlands

    • Rogeer Hoedemaekers
    Pages 105-118

  12. Genetic screening and genetic services in Slovakia

    • Vladimir Ferak
    Pages 119-127

  13. Historical and social background

    • Henk Ten Have
    Pages 129-130

  14. From eugenics to genetic screening

    • Hans-Peter Kröner
    Pages 131-145

  15. Genetics in Germany

    • Urban Wiesing
    Pages 147-156

  16. A sociological perspective on genetic screening

    • Mairi Levitt
    Pages 157-166

  17. Moral and philosophical issues

    • Ruth Chadwick, Urban Wiesing
    Pages 167-170

  18. Genetic information and care

    • Ingmar Pörn
    Pages 171-180

  19. Genetic testing, genetic screening and privacy

    • Judit Sandor
    Pages 181-190

  20. Reconciling liberty and the common good?

    • Dolores Dooley
    Pages 191-205
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Keywords

About this book

This collection of essays represents the work produced in the course of a three-year project funded by the Commission of the European Communities under the Biomed I programme, on the ethics of genetic screening, entitled 'Genetic screening: ethical and philosophical perspectives, with special reference to multifactorial diseases'. The short title of the project was Euroscreen, thereafter known as Euroscreen I, in the light of the fact that a second project on genetic screening was subsequently funded. The project was multinational and multidisciplinary, and had as its objectives to examine the nature and extent of genetic screening programmes in different European countries; to analyse the social policy response to these developments in different countries; and to explore the applicability of normative ethical frameworks to the issues. The project was led by a core group who had oversight of the project and members of which have acted as editors for this volume. Darren Shickle edited the first section; Henk ten Have the second; Ruth Chadwick and Urban Wiesing the third and final part. The volume opens with an overview of genetic screening and the principles available for addressing developments in the field, with special reference to the Wilson and Jungner principles on screening. The first of the three major sections thereafter includes papers on the state of the art in different countries, together with some analysis of social context and policy.

Editors and Affiliations

  • Centre for Professional Ethics, University of Central Lancashire, Preston, Lancashire, UK

    Ruth Chadwick

  • School of Health and Related Research, University of Sheffield, Sheffield, UK

    Darren Shickle

  • School of Medical Sciences, Catholic University of Nijmegen, Nijmegen, The Netherlands

    Henk Have

  • Medical Ethics, Eberhard-Karls University, Tübingen, Germany

    Urban Wiesing

Bibliographic Information

  • Book Title: The Ethics of Genetic Screening

  • Editors: Ruth Chadwick, Darren Shickle, Henk Have, Urban Wiesing

  • DOI: https://doi.org/10.1007/978-94-015-9323-6

  • Publisher: Springer Dordrecht

  • eBook Packages: Springer Book Archive

  • Copyright Information: Springer Science+Business Media B.V. 1999

  • Hardcover ISBN: 978-0-7923-5614-1Published: 31 March 1999

  • Softcover ISBN: 978-90-481-5178-3Published: 06 December 2010

  • eBook ISBN: 978-94-015-9323-6Published: 09 March 2013

  • Edition Number: 1

  • Number of Pages: XVI, 256

  • Topics: Theory of Medicine/Bioethics, Human Genetics, Public Health

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