Cancer, AIDS, and Quality of Life

1. Front Matter

   Pages i-xiii

   PDF

2. Introduction

   1. Cancer and AIDS as a Model for the Study of Quality of Life

      • Claude Jasmin

      Pages 1-4

   2. United Nations Educational, Scientific, and Cultural Organization

      • M. Federico Mayor

      Pages 5-6

   3. Joint United Nations Program on HIV/AIDS (UNAIDS)

      • Peter Piot

      Pages 7-10

3. Cancer, AIDS, and Quality of Life

   1. Problems in Defining Quality of Life

      • Alvan R. Feinstein

      Pages 11-15

   2. How Does Basic Research in Cancer and AIDS Approach the Concern for Quality of Life?

      • Jay A. Levy

      Pages 17-35

   3. The Evolution of Quality of Life

      • C. R. B. Joyce

      Pages 37-43

   4. Quality of Care for Cancer and AIDS

      • Robert J. D. George

      Pages 45-53

   5. Changing Our Metaphors to Put Quality of Life at the Center of Health Care

      • George J. Annas

      Pages 55-61

   6. Uses of Information about Health-Related Quality of Life in Patients with AIDS and Cancer

      • Paul D. Cleary

      Pages 63-72

   7. Improving the Quality of Life of Cancer Patients

      • Peter Maguire

      Pages 73-75

   8. How Does the Cost of Care Influence the Effectiveness of Health Care Delivery?

      • Joan Rovira, Patricia Alegre

      Pages 77-84

   9. Future Issues in the Use of Health Status Assessment Measures in Clinical Settings

      • Sheldon Greenfield, Sherrie H. Kaplan, Ira B. Wilson

      Pages 85-88

   10. Quality of Life at the End Stages of Life

       • Daniel Callahan

       Pages 89-95

4. Commentaries

   1. Quality of Life: Who Is Responsible?

      1. Quality of Life

         • Vassilis Georgoulias, Charalaubos Kourousis, Stelios Kakolyris

         Pages 97-100

      2. Advocacy for Patients with Cancer Quality of Life Implications

         • Joan Marks

         Pages 101-105

   2. Quality of Life: Who Defines It?

      1. Risk as Diagnosis

         • Lisbeth Sachs

         Pages 107-113

      2. Quality of Life as a Major Determinant of Medical Decision-Making

         • Robert Zittoun

         Pages 115-117

   3. Quality of Life at the End Stages of Life

      1. Quality of Life at the End Stages of Life

         • Mohammed Bedjaoui

         Pages 119-127

      2. Cancer, AIDS, and Quality of Life

         • Robert N. Butler

         Pages 129-130

This volume contains selected contributions from individuals who attended the Sec­ ond International Conference of the International Council for Global Health Progress (ICGHP) held at UNESCO in Paris, France, on January 15-17, 1996. This conference brought together experts in many disciplines that deal with the devastating diseases of cancer and AIDS with a focus on the concerns for quality of life. The ICGHP fosters mul­ ticultural and, multidisciplinary approaches to global health problems to help influence governments and other international health organizations to emphasize prevention and care of diseases and to understand their scientific, social, and cultural features. The Coun­ cil encourages the interchange of information on health problems and policy and supports educational funding for the public at large. Its objective is to effect diseases-free lives in the world community. Participants of the conference included scientists, sociologists, government leaders, physicians, health care providers, epidemiologists, religious leaders, company officials, ethicists, and philosophers. They examined and discussed the many variables involved in quality of life for people affected with cancer and with AIDS. The volume's text begins with introductory comments by officials attending the JCGHP conference. Subsequently, a chapter is dedicated to one aspect of quality of life, be it definition, scientific research, evolution, cultural changes, ethics, measurements, or other issues dealing with health care and treatment survival. The second part of the volume includes commentaries dealing with fi ve aspects of quality of life which merit consideration.

• AIDS
• cancer
• diagnosis
• oncology
• prevention
• quality of life
• infectious diseases

• Department of Medicine, Cancer Research Institute, University of California, San Francisco, USA

  Jay A. Levy

• Department of Hematology, Immunology and Biology, Hôpital Paul Brousse, Villejuif, France

  Claude Jasmin

• Ministère de la Santé Publique, Paris, France

  Gabriel Bez

Policies and ethics