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Patient Involvement in Health Technology Assessment

Editors: Facey, Karen, Ploug Hansen, Helle, Single, Ann (Eds.)

  • The first book about patient involvement in relation to HTA
  • Engages a wide range of international experts to write chapters to give academic, policy, HTA practice and patient organisation perspectives that are focussed on HTA
  • Arranged in 3 distinct sections - policy foundation, case studies of current experience and methods to obtain patients' perspectives - allowing readers to delve into what is of interest
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Buy this book

eBook 107,09 €
price for Spain (gross)
  • ISBN 978-981-10-4068-9
  • Digitally watermarked, DRM-free
  • Included format: PDF, EPUB
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Hardcover 135,19 €
price for Spain (gross)
  • ISBN 978-981-10-4067-2
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
  • The final prices may differ from the prices shown due to specifics of VAT rules
About this book

This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences.

Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach.

With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA.

"If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA

About the authors

Karen Facey PhD is an Honorary Research Fellow at the University of Edinburgh, Chartered Statistician, Honorary Member of the Faculty of Public Health and Fellow of the Royal Society of Medicine. She has worked as a statistician for pharmaceutical companies and the UK medicines regulatory agency. In 2000 she setup the first national health technology assessment (HTA) Agency in Scotland and since 2003 has been an independent consultant. She has been active in HTA International (HTAi) for the past decade, chairing its Policy Forum and was founding Chairperson of the HTAi Interest Group for Patient and Citizen Involvement in HTA. She is on the editorial board of several journals including The Patient and Research Involvement and Engagement. She has research interests in HTA policy, patient involvement and rare diseases. In 2014 she was named as one of the top 100 practising scientists in the UK for her work on HTA and patient wellbeing.

Helle Ploug Hansen, PhD, MA is professor in humanistic rehabilitation research, the University of Southern Denmark, Department of Public Health, Denmark. She holds a Ph.D. degree and an extended master degree in Anthropology from the University of Copenhagen. She has been active within the field of HTA since 2001, and among other things been the author of several chapters in the Danish Handbook of HTA. Furthermore Hansen has edited a special issue in the International Journal of Technology Assessment in Health Care together with Karen Facey. She has conducted several ethnographic fieldwork studies in Denmark addressing psycho-social and rehabilitative aspects related to men and women with cancer. She has published several books and many peer-reviewed articles. She is visiting professor in nursing at a rehabilitation hospital in Oslo, Norway.

Ann Single, B.Bus (Journalism) MA (Writing), specialises in patient involvement and communication. She has been an active member of the HTAi Interest Group for Patient and Citizen Involvement in HTA for the past decade and a lay reviewer for several journals. She has previously worked as the director of communication and patient involvement at the Health Technology Board for Scotland, managed science engagement programmes in Australia, and served as secretary for a patient group. She has contributed to a variety of papers on patient involvement and tools for patient participation including compiling a glossary of HTA terms for patients. She is interested in storytelling, especially what can be learnt from the stories of patients and care-givers.

Table of contents (37 chapters)

  • Health Technology Assessment

    Facey, Karen M.

    Pages 3-16

    Preview Buy Chapter 30,19 €
  • Exploring Ethical Rationales

    Sandman, Lars (et al.)

    Pages 17-29

    Preview Buy Chapter 30,19 €
  • Reflections on Terms, Goals and Organisation

    Hansen, Helle Ploug (et al.)

    Pages 31-42

    Preview Buy Chapter 30,19 €
  • Patient-Based Evidence in HTA

    Staniszewska, Sophie (et al.)

    Pages 43-50

    Preview Buy Chapter 30,19 €
  • Developing the Mosaic of Patient Participation in HTA

    Facey, Karen M.

    Pages 51-66

    Preview Buy Chapter 30,19 €

Buy this book

eBook 107,09 €
price for Spain (gross)
  • ISBN 978-981-10-4068-9
  • Digitally watermarked, DRM-free
  • Included format: PDF, EPUB
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Hardcover 135,19 €
price for Spain (gross)
  • ISBN 978-981-10-4067-2
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
  • The final prices may differ from the prices shown due to specifics of VAT rules
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Bibliographic Information

Bibliographic Information
Book Title
Patient Involvement in Health Technology Assessment
Editors
  • Karen Facey
  • Helle Ploug Hansen
  • Ann Single
Copyright
2017
Publisher
ADIS
Copyright Holder
Springer Nature Singapore Pte Ltd.
eBook ISBN
978-981-10-4068-9
DOI
10.1007/978-981-10-4068-9
Hardcover ISBN
978-981-10-4067-2
Edition Number
1
Number of Pages
XXVI, 434
Number of Illustrations
5 b/w illustrations, 15 illustrations in colour
Topics