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Big Picture Bioethics: Developing Democratic Policy in Contested Domains

  • Book
  • © 2016

Overview

Editors:
  1. Susan Dodds

    1. Faculty of Arts and Social Sciences, School of Humanities, UNSW Australia, University of Tasmania, Hobart, Australia

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  2. Rachel A. Ankeny

    1. School of Humanities, University of Adelaide, Adelaide, Australia

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    You can also search for this editor in PubMed   Google Scholar

  • Provides international relevance by comparing two welfare-state liberal democratic societies
  • Analyses and evaluates democratic policy processes both in theory and as actual policy making examples
  • Authored by public engagement practitioners and contributors to policy making as well as theorists
  • Includes supplementary material: sn.pub/extras

Part of the book series: The International Library of Ethics, Law and Technology (ELTE, volume 16)

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Table of contents (13 chapters)

  1. Front Matter

    Pages i-xiv
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  2. Introduction

    • Susan Dodds, Rachel A. Ankeny
    Pages 1-8

  3. Seeing the Big Picture: Democratically Defensible Policy Development in Liberal Democracies

    1. Front Matter

      Pages 9-9
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    2. ‘Big Picture’ Manifesto: Democratic Policymaking in Contested Domains

      • Susan Dodds, Rachel A. Ankeny
      Pages 11-26

    3. Participation and Trust: Conditions and Constraints on Democratic Deliberation

      • Susan Dodds
      Pages 27-36

    4. Conscience Votes in Australia: Deliberation and Representation

      • Kerry Ross, Susan Dodds, Rachel A. Ankeny
      Pages 37-58

    5. Deliberative Processes in Practice

      • Cobi Smith, Gene Rowe
      Pages 59-70

  4. Regulation of Embryo Research

    1. Front Matter

      Pages 71-71
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    2. Policy Design for Human Embryo Research in Canada: 1989–2015

      • Françoise Baylis, Matthew Herder
      Pages 73-105

    3. Public Engagement and Deliberation in Human Embryo Research Governance in Australia 2001–2011

      • Susan Dodds, Rachel A. Ankeny
      Pages 107-129

  5. Human Research Ethics Guidelines

    1. Front Matter

      Pages 131-131
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    2. The Tunnel at the End of the Light? Development of the Tri Council Policy Statement in Canada

      • Jocelyn Downie, Cheluchi Onyemelukwe
      Pages 133-163

    3. Human Research Ethics Guidelines in Australia

      • Colin Thomson, Kerry J. Breen, Donald Chalmers
      Pages 165-190

    4. Consultation, Deliberation and the Review of the National Statement

      • Eliza Goddard, Susan Dodds
      Pages 191-224

  6. Deliberating About Emerging Health Policy

    1. Front Matter

      Pages 225-225
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    2. Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy

      • Rachel A. Ankeny, Fiona J. Mackenzie
      Pages 227-243

    3. Seeking Community Views on Allocation of Scarce Resources in a Pandemic in Australia: Two Methods, Two Answers

      • Jackie M. Street, Helen Marshall, Annette J. Braunack-Mayer, Wendy A. Rogers, Philip Ryan, FluViews Team
      Pages 245-261

    4. Assessing Deliberative Design of Public Input on British Columbia Biobanks

      • Michael M. Burgess, Holly Longstaff, Kieran O’Doherty
      Pages 263-278
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Keywords

About this book

This book addresses the problem of how to make democratically-legitimate public policy on issues of contentious bioethical debate. It focuses on ethical contests about research and their legitimate resolution, while addressing questions of political legitimacy. How should states make public policy on issues where there is ethical disagreement, not only about appropriate outcomes, but even what values are at stake? What constitutes justified, democratic policy in such conflicted domains? Case studies from Canada and Australia demonstrate that two countries sharing historical and institutional characteristics can reach different policy responses.



This book is of interest to policymakers, bioethicists, and philosophers, and will deepen our understanding of the interactions between large-scale socio-political forces and detailed policy problems in bioethics.

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Editors and Affiliations

  • Faculty of Arts and Social Sciences, School of Humanities, UNSW Australia, University of Tasmania, Hobart, Australia

    Susan Dodds

  • School of Humanities, University of Adelaide, Adelaide, Australia

    Rachel A. Ankeny

Bibliographic Information

  • Book Title: Big Picture Bioethics: Developing Democratic Policy in Contested Domains

  • Editors: Susan Dodds, Rachel A. Ankeny

  • Series Title: The International Library of Ethics, Law and Technology

  • DOI: https://doi.org/10.1007/978-3-319-32240-7

  • Publisher: Springer Cham

  • eBook Packages: Religion and Philosophy, Philosophy and Religion (R0)

  • Copyright Information: Springer International Publishing Switzerland 2016

  • Hardcover ISBN: 978-3-319-32239-1Published: 09 August 2016

  • Softcover ISBN: 978-3-319-81232-8Published: 07 June 2018

  • eBook ISBN: 978-3-319-32240-7Published: 27 July 2016

  • Series ISSN: 1875-0044

  • Series E-ISSN: 1875-0036

  • Edition Number: 1

  • Number of Pages: XIV, 278

  • Number of Illustrations: 1 b/w illustrations

  • Topics: Ethics, Theory of Medicine/Bioethics

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