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Self-Management of Young People with Chronic Conditions

A Strength-Based Approach for Empowerment and Support

Editors: Sattoe, J.N.T, van Staa, AnneLoes, Hilberink, Sander (Eds.)

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  • Offers a comprehensive definition of self-management, and focuses on young people achieving a good quality of life and their maximum potential
  • Focuses on the challenges that young people with different chronic conditions have in common rather than on specific medical tasks
  • Provides a positive youth development approach by focusing on empowerment, social relationships and growth
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Buy this book

eBook 50,28 €
price for Spain (gross)
  • ISBN 978-3-030-64293-8
  • Digitally watermarked, DRM-free
  • Included format: EPUB, PDF
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Softcover 62,39 €
price for Spain (gross)
  • ISBN 978-3-030-64292-1
  • Free shipping for individuals worldwide
  • Institutional customers should get in touch with their account manager
  • Covid-19 shipping restrictions
  • Usually ready to be dispatched within 3 to 5 business days, if in stock
  • The final prices may differ from the prices shown due to specifics of VAT rules
About this book

This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management. 

 

This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support.

 

This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues.

It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic. 


About the authors

Jane Sattoe, PhD, is a Senior Researcher and lecturer with a background in health sciences. In 2015, she defended her PhD thesis ‘Growing up with a Chronic Condition: Challenges for Self-management and Self-management Support’ about self-management of adolescents and young adults with chronic conditions. She is involved in research on transition to adulthood with a focus on self-management, social participation, mental wellbeing and transition to adult care. She also works on the development, implementation and evaluation of self-management interventions aiming to empower adolescents and young adults with chronic conditions. 

 

AnneLoes van Staa, PhD MD RN, Applied Research Professor, trained as a general and pediatric nurse before graduating both in medicine and cultural anthropology. In 2003, she was appointed professor "Transitions in Care" in Rotterdam University of Applied Sciences. She defended her PhD thesis ‘On Your Own Feet’ in 2012 about preferences and competencies of adolescents with chronic conditions in their transition to adulthood and to adult care. She is involved in quality improvement programs aimed at improving adolescent healthcare services and at empowering adolescents in self-management and autonomy. She also leads research programs into nurse-led self-management support of people with chronic conditions.

 

Sander Hilberink, PhD, Applied Research Professor, trained as clinical psychologist. He is involved in research on transition to adulthood and lifespan care since 2006, with focus on empowerment, autonomy and long-term consequences of childhood-onset chronic conditions. He is involved in a variety of healthcare innovations, addressing not only a better transfer to adult healthcare, but also to improve citizenship while ageing with lifelong disabilities.

Table of contents (8 chapters)

Table of contents (8 chapters)
  • Self-Management of Young People with Chronic Conditions: An Overview and Introduction

    Pages 1-13

    Staa, AnneLoes (et al.)

  • Positive Youth Development Approach to Support Life Skills of Young People with Chronic Conditions

    Pages 15-36

    Manning, Alison R. S. (et al.)

  • The Development of Self-Management in Young People with Chronic Conditions: A Transitional Process

    Pages 37-54

    Sattoe, Jane N. T. (et al.)

  • Exploring Components and Effects of Self-Management Interventions for Young People with Chronic Conditions

    Pages 55-83

    Bal, Marjolijn I. (et al.)

  • Self-Management Support for Young People with Chronic Conditions: Roles and Views of Professionals

    Pages 85-105

    McDonagh, Janet E.

Buy this book

eBook 50,28 €
price for Spain (gross)
  • ISBN 978-3-030-64293-8
  • Digitally watermarked, DRM-free
  • Included format: EPUB, PDF
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Softcover 62,39 €
price for Spain (gross)
  • ISBN 978-3-030-64292-1
  • Free shipping for individuals worldwide
  • Institutional customers should get in touch with their account manager
  • Covid-19 shipping restrictions
  • Usually ready to be dispatched within 3 to 5 business days, if in stock
  • The final prices may differ from the prices shown due to specifics of VAT rules
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Bibliographic Information

Bibliographic Information
Book Title
Self-Management of Young People with Chronic Conditions
Book Subtitle
A Strength-Based Approach for Empowerment and Support
Editors
  • J.N.T Sattoe
  • AnneLoes van Staa
  • Sander Hilberink
Copyright
2021
Publisher
Springer International Publishing
Copyright Holder
Springer Nature Switzerland AG
eBook ISBN
978-3-030-64293-8
DOI
10.1007/978-3-030-64293-8
Softcover ISBN
978-3-030-64292-1
Edition Number
1
Number of Pages
X, 173
Number of Illustrations
5 b/w illustrations, 5 illustrations in colour
Topics