Overview
- Highlights the importance of measurement in the assessment of lupus in clinical settings, research, and clinical trials
- Provides a systematic approach to the metrics utilized in the assessment of disease activity and damage
- Includes comprehensive coverage of disease-specific and disease-generic metrics of patient-reported outcomes in lupus
- Discusses the latest modalities in the assessment of cognitive function, anxiety, depression, sleep, and fatigue
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Table of contents (21 chapters)
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Front Matter
Keywords
- Anxiety, depression, and fatigue in lupus patients
- Assessment of disease activity and damage in lupus
- Assessment of lupus in clinical settings
- Cognitive function in lupus patients
- Health-related quality of life
- Outcomes measures in lupus
- Outcomes measures and metrics in lupus
- Patient-reported outcome measures in lupus
- Systemic lupus erythematosus
About this book
Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact.
This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. Italso discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.
Editors and Affiliations
About the editor
Zahi Touma, MD, PhD, FACP, FACR
Associate Professor of Medicine, University of Toronto
Clinician-Scientist, Rheumatology, University Health Network and Mount Sinai Hospital
Scientist, Krembil Research Institute
Cross-Appointed Faculty, Institute of Health Policy, Management and Evaluation
Associate Member, Institute of Medical Sciences
Adjunct Scientist, Institute for Work and Health
Toronto, ON
Canada
Bibliographic Information
Book Title: Outcome Measures and Metrics in Systemic Lupus Erythematosus
Editors: Zahi Touma
DOI: https://doi.org/10.1007/978-3-030-73303-2
Publisher: Springer Cham
eBook Packages: Medicine, Medicine (R0)
Copyright Information: Springer Nature Switzerland AG 2021
Softcover ISBN: 978-3-030-73302-5Published: 23 July 2021
eBook ISBN: 978-3-030-73303-2Published: 22 July 2021
Edition Number: 1
Number of Pages: XIV, 418
Number of Illustrations: 5 b/w illustrations, 23 illustrations in colour
Topics: Rheumatology, Quality of Life Research, Health Psychology