Children and Health Care

1. Front Matter

   Pages i-xiv

   PDF

2. Children’s Health as a Social and Political Issue

   1. Front Matter

      Pages 1-1

      PDF

   2. Introduction

      Pages 3-6

   3. Child Health and Public Policy

      • Barbara Starfield

      Pages 7-21

   4. Comments on Barbara Starfield’s ‘Child Health and Public Policy’

      • Stuart F. Spicker

      Pages 23-26

   5. Development of the U.S. Federal Role in Children’s Health Care: A Critical Appraisal

      • Ann L. Wilson

      Pages 27-65

   6. American Social and Political Thought and the Federal Role in Child Health Care

      • Todd L. Savitt

      Pages 67-71

   7. Children as Research Subjects

      • Robert J. Levine

      Pages 73-87

   8. When is the Risk Minimal Enough for Children to be Research Subjects?

      • Loretta M. Kopelman

      Pages 89-99

3. Children, Illness, and Death

   1. Front Matter

      Pages 101-101

      PDF

   2. Introduction

      Pages 103-106

   3. Death and Children’S Literature: Charlotte’s Web and the Dying Child

      • Rosalind Ekman Ladd

      Pages 107-120

   4. Charlotte the Spider, Socrates, and the Problem of Evil

      • Loretta M. Kopelman

      Pages 121-131

   5. Children’s Conceptions of Illness and Death

      • Gareth B. Matthews

      Pages 133-146

   6. Terminally Ill Children and Treatment Choices: a Reply to Gareth Matthews

      • John C. Moskop

      Pages 147-152

4. Children’s and Parents’ Roles in Medical Decisionmaking

   1. Front Matter

      Pages 153-153

      PDF

   2. Introduction

      Pages 155-160

   3. Children and Adolescents: Their Right to Decide About Their Own Health Care

      • Angela R. Holder

      Pages 161-172

   4. Children and Health Care Decisionmaking: A Reply to Angela Holder

      • Robert L. Holmes

      Pages 173-179

   5. Children’s Competence for Health Care Decisionmaking

      • Dan W. Brock

      Pages 181-212

Before a separate Department of Medical Humanities was formed, the editors of this volume were faculty members of the Department of Pediatrics at our medical school. Colleagues daily spoke of the moral and social problems of children's health care. Our offices were near the examining rooms where children had their bone-marrow procedures done. Since this is a painful test, we often heard them cry. The hospital floor where the sickest children stayed was also nearby. The physicians, nurses, and social workers believed that children's health care needs were not being met and that more could and should be done. Fewer resources are available for a child than for an adult with a comparable illness, they said. These experiences prompted us to prepare this volume and to ask whether children do get their fair share of the health care dollar. Since the question "What kind of health care do we owe to our children?" is complex, responses should be rooted in many disciplines. These include philosophy, law, public policy and, of course, the health professions. Representing all of these disciplines, contributors to this volume reflect on moral and social issues in children's health care. The last hundred years have brought great changes in health care tor children. The specialty of pediatrics developed during this period, and with it, a new group of advocates for children's health care. Women's suffrage gave a political boost to the recognition of children's special health needs.

• health
• hospital
• issue
• morality
• pediatrics
• philosophy

`This book is essential reading for all pediatricians, pediatric residents, and medical students, since it will give them an insight into where pediatrics has come from, and where it is going.'
I. Porter, The Journal of Pediatrics, May 1990, 116:5

`I wish all pediatricians, pediatric residents, and medical students could read this book and understand where pediatrics has come from, and where it is going. In the process they would not only learn the interrelation of environment and biology, but also the importance of ethics in the care of children and the need for physicians to work with others to solve the health care problems of America's children.'
Robert J. Haggerty, M.D., Clinical Professor of Pediatrics, The New York Hospital/Cornell Medical Center
`Dies ist ein lesenswertes Buch. Jedem, der sich mit diesen (Fragen der Ethik in der Medizin) Problemen auseinandersetzt, sei dieses anregende und auch preiswerte Buch empfohlen.'
Monatzeitschrift für Kinderheilkunde, 38:5, 1990

• East Carolina University School of Medicine, Greenville, USA

  Loretta M. Kopelman, John C. Moskop

Policies and ethics