Big Picture Bioethics: Developing Democratic Policy in Contested Domains

1. Front Matter

   Pages i-xiv

   PDF

2. Introduction

   • Susan Dodds, Rachel A. Ankeny

   Pages 1-8

3. Seeing the Big Picture: Democratically Defensible Policy Development in Liberal Democracies

   1. Front Matter

      Pages 9-9

      PDF

   2. ‘Big Picture’ Manifesto: Democratic Policymaking in Contested Domains

      • Susan Dodds, Rachel A. Ankeny

      Pages 11-26

   3. Participation and Trust: Conditions and Constraints on Democratic Deliberation

      • Susan Dodds

      Pages 27-36

   4. Conscience Votes in Australia: Deliberation and Representation

      • Kerry Ross, Susan Dodds, Rachel A. Ankeny

      Pages 37-58

   5. Deliberative Processes in Practice

      • Cobi Smith, Gene Rowe

      Pages 59-70

4. Regulation of Embryo Research

   1. Front Matter

      Pages 71-71

      PDF

   2. Policy Design for Human Embryo Research in Canada: 1989–2015

      • Françoise Baylis, Matthew Herder

      Pages 73-105

   3. Public Engagement and Deliberation in Human Embryo Research Governance in Australia 2001–2011

      • Susan Dodds, Rachel A. Ankeny

      Pages 107-129

5. Human Research Ethics Guidelines

   1. Front Matter

      Pages 131-131

      PDF

   2. The Tunnel at the End of the Light? Development of the Tri Council Policy Statement in Canada

      • Jocelyn Downie, Cheluchi Onyemelukwe

      Pages 133-163

   3. Human Research Ethics Guidelines in Australia

      • Colin Thomson, Kerry J. Breen, Donald Chalmers

      Pages 165-190

   4. Consultation, Deliberation and the Review of the National Statement

      • Eliza Goddard, Susan Dodds

      Pages 191-224

6. Deliberating About Emerging Health Policy

   1. Front Matter

      Pages 225-225

      PDF

   2. Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy

      • Rachel A. Ankeny, Fiona J. Mackenzie

      Pages 227-243

   3. Seeking Community Views on Allocation of Scarce Resources in a Pandemic in Australia: Two Methods, Two Answers

      • Jackie M. Street, Helen Marshall, Annette J. Braunack-Mayer, Wendy A. Rogers, Philip Ryan, FluViews Team

      Pages 245-261

   4. Assessing Deliberative Design of Public Input on British Columbia Biobanks

      • Michael M. Burgess, Holly Longstaff, Kieran O’Doherty

      Pages 263-278

This book addresses the problem of how to make democratically-legitimate public policy on issues of contentious bioethical debate. It focuses on ethical contests about research and their legitimate resolution, while addressing questions of political legitimacy. How should states make public policy on issues where there is ethical disagreement, not only about appropriate outcomes, but even what values are at stake? What constitutes justified, democratic policy in such conflicted domains? Case studies from Canada and Australia demonstrate that two countries sharing historical and institutional characteristics can reach different policy responses.



This book is of interest to policymakers, bioethicists, and philosophers, and will deepen our understanding of the interactions between large-scale socio-political forces and detailed policy problems in bioethics.

asdf

• policy development in liberal democracies
• consience votes
• legislating bioethics
• democratic theory
• regulation of embryo research
• embryo research in Canada
• human research ethics guidelines
• consultation and deliberation
• emerging health policies
• clinical practice guidelines
• chronic fatigue syndrome
• deliberative processes
• biobanks
• deliberation and representation

• Faculty of Arts and Social Sciences, School of Humanities, UNSW Australia, University of Tasmania, Hobart, Australia

  Susan Dodds

• School of Humanities, University of Adelaide, Adelaide, Australia

  Rachel A. Ankeny

Policies and ethics