Overview
Presents a revised model of informed consent for predictive genetic testing
Discusses background and developments of informed consent in medical research and practice
Applies revised model of informed consent to pleiotropic and direct-to-consumer genetic testing
Applies the principles of patient safety to informed consent for predictive genetic testing
Includes case studies and discussions applicable to today's genetic testing decisions?
Includes supplementary material: sn.pub/extras
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Table of contents (6 chapters)
Keywords
About this book
This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource.
Included in the coverage:
- The science behind PGT.
- Understanding genetic risks and probability.
- The history of informed consent.
- Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety.
- Applications of the model in DTC and pleiotropic genetic testing.
- Implementation of the revised model, and assessing its effectiveness.
A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.
Reviews
“This book focuses on the ethics of predictive genetic testing, a salient issue given the rapid nature of medical advances. … The primary audience is professionals working in the field of genetic testing. The book raises many interesting ethical and legal questions surrounding this growing method of testing.” (Ruaim A. Muaygil, Doody’s Book Reviews, November, 2015)
Authors and Affiliations
About the author
Bibliographic Information
Book Title: Informed Consent in Predictive Genetic Testing
Book Subtitle: A Revised Model
Authors: Jessica Minor
DOI: https://doi.org/10.1007/978-3-319-17416-7
Publisher: Springer Cham
eBook Packages: Medicine, Medicine (R0)
Copyright Information: Springer International Publishing Switzerland 2015
Hardcover ISBN: 978-3-319-17415-0Published: 25 June 2015
Softcover ISBN: 978-3-319-38558-7Published: 17 October 2016
eBook ISBN: 978-3-319-17416-7Published: 15 June 2015
Edition Number: 1
Number of Pages: VII, 232
Topics: Maternal and Child Health, Psychotherapy and Counseling, Human Genetics, Health Psychology