Ethical Issues in Pediatric Hematology/Oncology

1. Front Matter

   Pages i-xi

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2. Introduction to Ethics in Pediatrics

   1. Front Matter

      Pages 1-1

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   2. Ethics: A Historical Perspective

      • Tessy A. Thomas, Perry Ann Reed

      Pages 3-18

   3. Ethical Principles in the Practice of Medicine

      • Ryan R. Nash, Mark J. Wells

      Pages 19-35

3. The Ethics of Everyday Clinical Encounters

   1. Front Matter

      Pages 37-37

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   2. Communicating Prognosis at Diagnosis and Relapse or Progression

      • Brittani K. Seynnaeve, Scott H. Maurer, Robert M. Arnold

      Pages 39-56

   3. Managing Conflict When There’s Disagreement in Care Between Medical Providers, Caregivers, and Patient

      • Ernest Frugé, Michael Sprehe, Laura Loftis, Melody Brown-Hellsten, Courtenay Bruce

      Pages 57-76

   4. Unique Considerations for Adolescents and Young Adults

      • Deena Levine, Liza-Marie Johnson

      Pages 77-87

4. Ethical Issues Surrounding Children in Research

   1. Front Matter

      Pages 89-89

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   2. Ethics in Genetic and Genomic Research

      • Amy L. McGuire, Stacey Pereira, Amanda M. Gutierrez, Mary A. Majumder

      Pages 91-110

   3. When Cure Is Not the Goal: Ethical Issues Surrounding Early-Phase Research

      • Bryan Sisk, Eric Kodish

      Pages 111-129

5. Supportive Care

   1. Front Matter

      Pages 131-131

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   2. Advance Care Planning

      • Allison Caldwell, Melody J. Cunningham, Justin N. Baker

      Pages 133-163

   3. Symptom Assessment and Management Across the Cancer Trajectory

      • Melody Brown-Hellsten

      Pages 165-201

   4. Intercultural Competence and Communication over Language Barriers

      • Pernilla Pergert, Elisabet Tiselius

      Pages 203-222

6. Correction to: Advance Care Planning

   • Allison Caldwell, Melody J. Cunningham, Justin N. Baker

   Pages C1-C1

7. Back Matter

   Pages 223-229

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This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers’ knowledge and experience in pediatric health care ethical issues, the text positions providers to be beneficial resources to faculty, staff, patients, and families within their institution. It presents a multidisciplinary approach to sound ethical practices that is necessary to effectively care for these patients and their families. The book reviews the principles of ethical decision-making, the unique difficulties in using children as research subjects, common ethical conundrums involved in providing end-of-life care, and general moralities of professional practice. 


Written by experts in their fields, Ethical Issues in Pediatric Hematology/Oncology is an innovative and valuable resource for clinicians, practitioners, and trainees who work in the field of pediatric hematology/oncology. 

• pediatric transplantation
• alternative medicine
• transfusion
• medical futility
• end-of-life

• Texas Children’s Cancer and Hematology Centers, Baylor College of Medicine, Texas Children’s Hospital, Houston, USA

  Kate A. Mazur, Stacey L. Berg

Kate A. Mazur, MSN, RN, CPNP
Texas Children’s Hospital
Texas Children’s Cancer and Hematology Centers  
Baylor College of Medicine 
Houston, TX 
USA


Stacey L. Berg, MD
Texas Children’s Hospital
Texas Children’s Cancer and Hematology Centers  
Baylor College of Medicine 
Houston, TX 
USA

Policies and ethics