Benefit Sharing

1. Front Matter

   Pages i-xxvii

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2. Benefit Sharing: From Biodiversity to Human Genetics—An Introduction

   • Doris Schroeder, Julie Cook Lucas

   Pages 1-7

3. Exploring Central Philosophical Concepts in Benefit Sharing: Vulnerability, Exploitation and Undue Inducement

   • Gardar Arnason, Doris Schroeder

   Pages 9-31

4. Legal Frameworks for Benefit Sharing: From Biodiversity to Human Genomics

   • Pamela Andanda, Doris Schroeder, Sachin Chaturvedi, Emezat Mengesha, Tim Hodges

   Pages 33-64

5. Sharing Traditional Knowledge: Who benefits? Cases from India, Nigeria, Mexico and South Africa

   • Julie Cook Lucas, Doris Schroeder, Roger Chennells, Sachin Chaturvedi, Dafna Feinholz

   Pages 65-93

6. Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia

   • Julie Cook Lucas, Doris Schroeder, Gardar Arnason, Pamela Andanda, Joshua Kimani, Veronique Fournier et al.

   Pages 95-127

7. Fair for Women? A Gender Analysis of Benefit Sharing

   • Julie Cook Lucas, Fatima Alvarez Castillo

   Pages 129-151

8. Promoting an Inclusive Approach to Benefit Sharing: Expanding the Scope of the CBD?

   • Sachin Chaturvedi, Sara Crager, Miltos Ladikas, Vasantha Muthuswami, Yeyang Su, Huanming Yang

   Pages 153-177

9. Realizing Benefit Sharing: Is There a Role for Ethics Review?

   • Doris Schroeder, Eugenijus Gefenas, Roger Chennells, Veronique Fournier, Dafna Feinholz, Giorgio Sirugo

   Pages 179-201

10. Beyond Benefit Sharing: Steps Towards Realizing the Human Right to Health

    • Aidan Hollis, Thomas Pogge, Doris Schroeder

    Pages 203-216

11. Towards Best Practice for Benefit Sharing Involving Access to Human Biological Resources: Conclusions and Recommendations

    • Doris Schroeder, Julie Cook Lucas

    Pages 217-229

12. Back Matter

    Pages 231-234

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Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.

• Benefit Sharing
• Biodiversity
• Genetic resources
• Indigenous peoples
• Justice

• Centre for Professional Ethics, University of Central Lancashire, Preston, United Kingdom

  Doris Schroeder, Julie Cook Lucas

Policies and ethics