The Evolution and Everyday Practice of Collective Patient Involvement in Europe

This timely study analyzes social, economic, political, provider, and patient factors shaping collective patient involvement in European health care from the postwar period to the present day. Examining representative countries England, the Netherlands, Germany, and Sweden, it documents the roles of providers and legislatures in facilitating consumer involvement, and the varied forms of patient input into hospital operations. These findings are compared and contrasted against the intent and ideals behind patient involvement to assess the effectiveness of implementation policy, strengths and drawbacks of patient participation, and patient satisfaction and outcomes. The book’s conclusions identify emerging forms of patient participation and predict the impact of health policy on the future of European collective patient involvement.

Included in the coverage:

·         Patient involvement: who, what for, and in what way?

·         Germany: Joint Federal Committee—the “Little Legislator”

·         Sweden: reasons for a late emergence of patient involvement

·         Lessons to be learned from implementing patient involvement

The Evolution and Everyday Practice of Collective Patient Involvement in Europe will interest and inspire scholars and researchers in diverse fields, including social policy, sociology, political sciences, and nursing studies, as well as patient organizations, policymakers, and healthcare providers.

• citizen involvement
• social policy
• qualitative comparative case study
• England
• the Netherlands
• Germany
• Sweden
• grassroots democracy
• quality of health care
• healthcare quality
• collective patient involvement
• global health
• international health
• healthcare systems
• healthcare management

• NIVEL, Utrecht, The Netherlands

  Alexander Haarmann

Alexander Haarmann has a background in sociology. His main interest lies in the analysis and international comparison of social policies as well as its reforms. Within this general field, his focus is on health and policies on healthcare and care. Working together with colleagues from different disciplines and countries has contributed to numerous aspects and additional perspectives: Over time, he has, amongst other things, worked on the structures and actors of healthcare systems, the provision of healthcare and care, social and health related inequalities, as well as healthcare from a patient perspective.

Policies and ethics