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  • © 2016

Care of Adults with Chronic Childhood Conditions

A Practical Guide

  • Addresses the unique healthcare needs of adults with chronic childhood illnessess
  • Serves as a practical guide for the busy adult clinician in the care of adults with chronic childhood illnesses
  • Outlines the management of specific diseases, including epidemiology, preventive screening, and common medical complications and co-morbiditiess
  • Includes supplementary material: sn.pub/extras

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Table of contents (31 chapters)

  1. Front Matter

    Pages i-xxvi
  2. Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care

    1. Front Matter

      Pages 1-1
  3. Care of the Emerging Adult

    1. Front Matter

      Pages 15-15
    2. Care of the Emerging Adult

      • Stacey Weinstein, Paul Bixenstine, Daniel Karlin, Faysal Saab, Linnaea Schuttner, Angelica Zen et al.
      Pages 17-35
  4. Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition

    1. Front Matter

      Pages 37-37
    2. Attention-Deficit/Hyperactivity Disorder (ADHD)

      • David S. Stein, Elizabeth B. Harstad, William J. Barbaresi
      Pages 39-51
    3. Autism

      • Tara Crapnell, Lynette Lau, Christopher D. Hanks, Christina Nicolaidis, Alice A. Kuo
      Pages 53-65
    4. Cerebral Palsy

      • Jonathan Tolentino, Gregg Talente
      Pages 67-85
    5. Childhood and Adolescent Cancer Survivors

      • Nirupa Jaya Raghunathan, Larissa Nekhlyudov, Linda S. Overholser
      Pages 87-101
    6. Congenital Heart Disease

      • Joseph Truglio, Barry Love
      Pages 103-116
    7. Cystic Fibrosis

      • Ross C. Klingsberg, Michael Landry
      Pages 117-129
    8. Diabetes Mellitus (Type 1)

      • Elizabeth O. Buschur, Stephanie Lawrence
      Pages 131-147
    9. Down Syndrome

      • Kristin M. Jensen, Peter D. Bulova
      Pages 149-166
    10. Human Immunodeficiency Virus (HIV)

      • Kimberly Carter Bates
      Pages 167-182
    11. Inflammatory Bowel Disease

      • Elana Maser, Anish Patel
      Pages 183-201
    12. Intellectual Disability

      • Kamala Gullapalli Cotts
      Pages 203-220
    13. Juvenile Idiopathic Arthritis

      • Tova Ronis, Patience H. White
      Pages 221-233
    14. Muscular Dystrophy

      • Elba Y. Gerena Maldonado
      Pages 235-244
    15. Sickle Cell Disease

      • Linda S. Overholser, Tiffiny Diers, Kathryn Hassell
      Pages 245-258

About this book

This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood—primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support.


This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population. 


Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.

Reviews

“This very timely compendium discusses the long‐term care and complications in adult patients who developed serious medical conditions as children. … This book is focused on primary care and specialty practitioners who will have the opportunity to care for these patients. … a useful guide for relatives, parents, spouses, etc., of the patients who have reached adulthood despite their early medical challenges. … It is one of the most interesting books I have read since my residency training.” (Vincent F. Carr, Doody's Book Reviews, May, 2017)

Editors and Affiliations

  • School of Medicine, Hofstra North Shore-LIJ School of Medicine, LAKE SUCCESS, USA

    Mariecel Pilapil

  • Mount Sinai School of Medicine , NEW YORK, USA

    David E. DeLaet

  • University of California Los Angeles , SANTA MONICA, USA

    Alice A. Kuo

  • Baylor Clinic , HOUSTON, USA

    Cynthia Peacock

  • Brigham and Women's Hospital , BOSTON, USA

    Niraj Sharma

About the editors

Mariecel Pilapil, MD, MPH, Assistant Professor, Medicine and Pediatrics, Hofstra Northwell School of Medicine, Hempstead, NY, USA

David DeLaet, MD, MPH, Associate Professor of Medicine and Pediatrics, Departments of Medicine and Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA 

Alice A. Kuo, MD, PhD, Professor and Chief, UCLA Medicine-Pediatrics, Director, UCLA Medicine-Pediatrics Comprehensive Care Center, Health Care Transitions Research Network (HCT-RN), UCLA Center for Healthier Children, Families, and Communities, Santa Monica, CA, USA 

Cynthia Peacock, MD, Associate Professor of Medicine and Pediatrics, Departments of Medicine and Pediatrics, Baylor College of Medicine, Houston, TX, USA

Niraj Sharma, MD, MPH, Assistant Professor, Medicine and Pediatrics, Harvard Medical School, Brigham and Women’s Hospital, BostonChildren’s Hospital, Boston, MA, USA 




Bibliographic Information

  • Book Title: Care of Adults with Chronic Childhood Conditions

  • Book Subtitle: A Practical Guide

  • Editors: Mariecel Pilapil, David E. DeLaet, Alice A. Kuo, Cynthia Peacock, Niraj Sharma

  • DOI: https://doi.org/10.1007/978-3-319-43827-6

  • Publisher: Springer Cham

  • eBook Packages: Medicine, Medicine (R0)

  • Copyright Information: Springer International Publishing Switzerland 2016

  • Softcover ISBN: 978-3-319-43825-2Published: 23 December 2016

  • eBook ISBN: 978-3-319-43827-6Published: 24 November 2016

  • Edition Number: 1

  • Number of Pages: XXVI, 436

  • Number of Illustrations: 1 b/w illustrations, 9 illustrations in colour

  • Topics: General Practice / Family Medicine, Primary Care Medicine

Buy it now

Buying options

eBook USD 109.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book USD 139.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Other ways to access