Child and Adolescent Resilience Within Medical Contexts

1. Front Matter

   Pages i-xi

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2. Relational Resilience: An Interdisciplinary Perspective

   • Carey DeMichelis

   Pages 1-10

3. The Individual in Context

   1. Front Matter

      Pages 11-11

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   2. Psychosocial Factors That Influence Children with Immune-Related Health Conditions

      • Julie M. Turner-Cobb, Tara J. Cheetham

      Pages 13-36

   3. Resilience, Disparity, and Narrative Phenomenology: African American Families Raising Medically Vulnerable Children

      • Cheryl Mattingly

      Pages 37-49

   4. Promoting Resilience During the Transition to Adolescence in Chronically Ill Children and Their Families

      • Jaclyn M. Lennon, Alexandra M. Psihogios, Caitlin B. Murray, Christina E. Holbein, Grayson N. Holmbeck

      Pages 51-75

   5. Resilience in Pediatric Sickle Cell Disease and Cancer: Social Ecology Indicators of Health-Related Quality of Life

      • Katherine S. Salamon, Lisa A. Schwartz, Lamia P. Barakat

      Pages 77-101

4. The Social Space of Illness

   1. Front Matter

      Pages 103-103

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   2. The Role of Parents in Promoting Children’s Adjustment to Chronic Illness

      • Jessica Hoehn, Emily Foxen-Craft, Wendy Pinder, Lynnda M. Dahlquist

      Pages 105-119

   3. Resilience in the Care of Children with Palliative Care Needs

      • Richard D. Goldstein

      Pages 121-130

   4. Resilience and Pediatric Cancer Survivorship in Cultural Context

      • Jaehee Yi, Min Ah Kim, Jesmin Akter

      Pages 131-150

5. Interventions, Therapies, and Techniques

   1. Front Matter

      Pages 151-151

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   2. Promoting Resilience in Paediatric Health Care: The Role of the Child Life Specialist

      • Cathy Humphreys, Chantal K. LeBlanc

      Pages 153-173

   3. Imaginal Coping: Resilience Through a Play of Tropes

      • Cindy Dell Clark

      Pages 175-192

   4. Acceptance and Commitment Therapy (ACT) to Foster Resilience in Pediatric Chronic Illness

      • Michelle M. Ernst, Michael W. Mellon

      Pages 193-207

6. Social Structure and Policy Formation

   1. Front Matter

      Pages 209-209

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   2. Creating a Context for Resilience in Medical Settings: The Role of Collaborative Professionals and Informal Supports

      • Michael Ungar

      Pages 211-225

   3. Building Strengths and Resilience: Supporting Families and Disabled Children

      • Robyn Munford

      Pages 227-245

   4. The Concept of Resilience in Children’s Health and Social Care Policy

      • Jane Noyes

      Pages 247-263

7. Where We Have Been, Where We Are Going

   1. Front Matter

      Pages 265-265

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This book explores the social conditions that promote pediatric resilience. It presents resilience as a set of complex interpersonal, institutional, and political relationships that affect young patients’ ability to “do well” in the face of medical adversity. Chapters analyze the impact of chronic or disabling conditions on children’s development, while highlighting effective interventions that promote family well-being. This book integrates research from psychology, social work, medical anthropology, child life specialty, palliative care, public health, and nursing to examine a wide variety of family, cultural, and medical contexts. Practical strategies for supporting children and families are discussed, from meaningful assessment and interventions to social policy and advocacy.


Featured topics include:

• Psychosocial factors influencing children with immune-related health conditions. 
  
• Resilience and pediatric cancer survivorship within a cultural context.
  
• Promoting resilience in chronically ill children and their families during the transition to adolescence.
  
• Creating a context for resilience in medical settings. 
  
• Promoting resilience through children’s health and social care policy.

Child and Adolescent Resilience Within Medical Contexts is a must-have resource for researchers, clinicians and other professionals, as well as graduate students in child and school psychology, child and adolescent psychiatry, social work, pediatrics, medical anthropology, nursing, educational psychology and policy.

• Acute stressors and resilience in children
• Biopsychosocial foundations of resilience in children
• Biopsychosocial prevention and resilience in children
• Biopsychosocial prevention and resilience in medical settings
• Child health psychology and resilience
• Chronic conditions and resilience in children
• Competence and resilience in children in medical contexts
• Cultural contexts and resilience in children
• Ecological prevention and resilience in children
• Ecological prevention and resilience in medical settings
• Ecological system theory of resilience in children
• Families and resilience in children
• Global perspectives on medical resilience in children
• Medical practitioners and resilience in children
• Pediatric psychology and resilience
• Resilience in children in medical settings
• Resilience theory in medical contexts
• Roots of Resilience project
• Substance abuse and resilience in children
• Treatment relationship and resilience in children with cancer

• Department of Applied Psychology and Human Development Joint Center for Bioethics, University of Toronto, Toronto, Canada

  Carey DeMichelis

• Department of Applied Psychology and Human Development, University of Toronto, OISE, Toronto, Canada

  Michel Ferrari

Carey DeMichelis is a doctoral candidate in the Department of Applied Psychology and Human Development at the University of Toronto. Her research focuses on the way adolescent patients make medical decisions- particularly in cases where the family’s cultural or religious beliefs conflict with medical recommendations. Located at the intersection of biomedical ethics, developmental psychology, and medical anthropology, Carey’s research explores the way adolescent autonomy intersects with medical authority, cultural identity and legal president in these complex cases. Carey is a student in the Collaborative Program at the Joint Centre for Bioethics. She is a graduate associate at the Centre for Ethics and at the Centre for Critical Qualitative Health Research at the University of Toronto. Carey earned her M.A. in 2011 from the University of Chicago where she studied comparative human development.

Michel Ferrari, Ph.D., teaches developmental and educational psychology in the Department of Applied Psychology and Human Development at the Ontario Institute for Studies in Education (OISE), part of the University of Toronto. From 2004 to 2005, he was a visiting scholar at Harvard and at the Max Planck Institute for the History of Science and in 2013 was a visiting scholar at the University of Potsdam. He is interested in personal identity and developing wisdom throughout the lifespan and has studied self-understanding of identity in people diagnosed with autism. Dr. Ferrari has coauthored and coedited books on wisdom, including, Teaching for Wisdom (with Georges Potworowski, Amsterdam: Springer, 2008), and The Science of Personal Wisdom (with Nic Weststrate, Springer, 2014).  Dr. Ferrari has also coedited books on child development and education, most recently, Developmental Relations Among Mind, Brain, and Education: Essays in Honor of Robbie Case (with Ljiljana Vuletic, Amsterdam: Springer, 2010), and a Handbook on Resilience in Children of War (with Chandi Fernando, Springer, 2013).  

Policies and ethics