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Patient and Public Involvement in Health and Social Care Research

An Introduction to Theory and Practice

Palgrave Macmillan
  • Provides an overview of the historical and conceptual background and of new developments in Patient and Public Involvement (PPI) in research
  • Includes a step-by-step guide to planning PPI in research
  • Offers exercises and examples, including on ethics and critical perspectives

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Table of contents (7 chapters)

  1. Front Matter

    Pages i-xxv
  2. Introduction

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 1-20
  3. Historical and Conceptual Background of Public Involvement

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 21-40
  4. PPI in Research Practice

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 41-66
  5. PPI in Research Ethics and Ethics in PPI

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 67-83
  6. Critical Perspectives on Patient and Public Involvement in Research

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 85-102
  7. The Coherence Model

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 103-140
  8. Conclusion

    • Jurgen Grotz, Mary Ledgard, Fiona Poland
    Pages 141-149
  9. Back Matter

    Pages 151-163

About this book

This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.

Reviews

‘This book is an inspiring reflection on public and patient involvement. The authors have captured the critical considerations for planning involvement in research, relating how meaningful, relevant and beneficial involvement is only possible when we have considered the reasons for doing it and tackled the structures that support unhelpful power imbalances.’

—Becki Meakin, General Manager of Shaping Our Lives: A National Network of Service Users and Disabled People, UK

Authors and Affiliations

  • Faculty of Medicine and Health Sciences, University of East Anglia, Norwich, UK

    Jurgen Grotz

  • Norwich, UK

    Mary Ledgard

  • School of Health Sciences, University of East Anglia, Norwich, UK

    Fiona Poland

About the authors

Jurgen Grotz, PhD, is the Director of the Institute for Volunteering Research (IVR) at the University of East Anglia, UK. He has co-edited the Palgrave Handbook of Volunteering, Civic Participation, and Nonprofit Associations (2016).

Mary Ledgard is a retired researcher who has served as a trustee of Healthwatch Norfolk, UK, and is currently a PPI representative in the fields of health and social care.

Fiona Poland is Professor of Social Research Methodology at the University of East Anglia, UK and has worked for many years to promote inclusive community research. She is journal editor of Quality in Ageing and Older Adults.


Bibliographic Information

  • Book Title: Patient and Public Involvement in Health and Social Care Research

  • Book Subtitle: An Introduction to Theory and Practice

  • Authors: Jurgen Grotz, Mary Ledgard, Fiona Poland

  • DOI: https://doi.org/10.1007/978-3-030-55289-3

  • Publisher: Palgrave Macmillan Cham

  • eBook Packages: Social Sciences, Social Sciences (R0)

  • Copyright Information: The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2020

  • Hardcover ISBN: 978-3-030-55288-6Published: 05 November 2020

  • Softcover ISBN: 978-3-030-55291-6Published: 06 November 2021

  • eBook ISBN: 978-3-030-55289-3Published: 04 November 2020

  • Edition Number: 1

  • Number of Pages: XXV, 163

  • Number of Illustrations: 6 illustrations in colour

  • Topics: Medical Sociology, Health Policy, Health Promotion and Disease Prevention, Microeconomics

Buy it now

Buying options

eBook USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Other ways to access