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Statistical Methods for Quality of Life Studies

Design, Measurements and Analysis

  • Book
  • © 2002

Overview

Editors:
  1. Mounir Mesbah

    1. Université de Bretagne-Sud, France

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  2. Bernard F. Cole

    1. Dartmouth College, USA

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  3. Mei-Ling Ting Lee

    1. Harvard University, USA

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Table of contents (28 chapters)

  1. Front Matter

    Pages i-xvi
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  2. Introduction

    1. Front Matter

      Pages 1-1
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    2. Introduction

      • David R. Cox
      Pages 3-5

  3. Measurement, Scale Development, and Study Design

    1. Front Matter

      Pages 7-7
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    2. Regulatory Aspects of Quality of Life

      • Clare Gnecco, Peter A. Lachenbruch
      Pages 9-19

    3. Biases in the Retrospective Calculation of Reliability and Responsiveness from Longitudinal Studies

      • Geoff Norman, Paul Stratford, Glenn Regehr
      Pages 21-31

    4. Application of the Multiattribute Utility Theory to the Development of a Preference-Based Health-Related Quality of Life Instrument

      • Catherine Le Galès
      Pages 33-50

    5. Strategy and Methodology for Choice of Items in Psychometric Measurement: Designing a Quality of Life Instrument for Hip and Knee Osteoarthritis

      • Francis Guillemin, Joel Coste, Nathalie Retel-Rude, Elisabeth Spitz, Michèle Baumann, Cyrille Tarquinio et al.
      Pages 51-61

    6. Conception, Development and Validation of Instruments for Quality of Life Assessment: An Overview

      • Arin Judith Chwalow, Adekunle B. Adesina
      Pages 63-70

    7. Methodological Issues in the Analysis of Quality of Life Data in Clinical Trials: Illustrations from the National Surgical Adjuvant Breast and Bowel Project (NSABP) Breast Cancer Prevention Trial

      • Stephanie Land, Samuel Wieand, Richard Day, Tom Ten Have, Joseph P. Costantino, Wei Lang et al.
      Pages 71-85

    8. Disease-Specific Versus Generic Measurement of Health-Related Quality of Life in Cross-Sectional and Longitudinal Studies: an Inpatient Investigation of the SF-36 and Four Disease-Specific Instruments

      • Serge Briançon, Bernadette Gergonne, Francis Guillemin, Fabienne Empereur, Sylvie Klein
      Pages 87-99

  4. Analysis and Interpretation of Multiple Endpoints

    1. Front Matter

      Pages 101-101
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    2. Analyzing Longitudinal Health-Related Quality of Life Data: Missing Data and Imputation Methods

      • Dennis A. Revicki
      Pages 103-112

    3. Comparison of Treatments with Multiple Outcomes

      • Pascale Tubert-Bitter, Daniel A. Bloch, Tze L. Lai
      Pages 113-128

    4. The Use of Soft Endpoints in Clinical Trials: The Search for Clinical Significance

      • Janet Wittes
      Pages 129-140

  5. Item Response Theory and Rasch Models

    1. Front Matter

      Pages 141-141
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    2. Parametric and Nonparametric Item Response Theory Models in Health Related Quality of Life Measurement

      • Ivo W. Molenaar
      Pages 143-154

    3. Questionnaire Reliability Under the Rasch Model

      • Agnes Hamon, Mounir Mesbah
      Pages 155-168

    4. Item Response Theory (IRT): Applications in Quality of Life Measurement, Analysis and Interpretation

      • David Cella, Chih-Hung Chang, Allen W. Heinemann
      Pages 169-185

    5. Graphical Rasch Models

      • Svend Kreiner, Karl Bang Christensen
      Pages 187-203
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Keywords

About this book

On October 16 and 17, 2000, we hosted an international workshop entitled "Statistical Design, Measurement, and Analysis of Health Related Quality of Life." The workshop was held in the beautiful city of Arradon, South Brittany, France with the main goal of fostering an interdisciplinary forum for discussion of theoretical and applied statistical issues arising in studies of health-related quality of life (HRQoL). Included were biostatisticians, psychometricians and public health professionals (e.g., physicians, sociologists, psychologists) active in the study ofHRQoL. In assembling this volume, we invited each conference participant to contribute a paper based on his or her presentation and the ensuing and very interesting discussions that took place in Arradon. All papers were peer-reviewed, by anonymous reviewers, and revised before final editing and acceptance. Although this process was quite time­ consuming, we believe that it greatly improved the volume as a whole, making this book a valuable contribution to the field ofHRQoL research. The volume presents a broad spectrum of papers presented at the Workshop, and thus illustrates the range of current research related to the theory, methods and applications of HRQoL, as well as the interdisciplinary nature ofthis work. Following an introduction written by Sir David Cox, it includes 27 articles organized into the following chapters.

Editors and Affiliations

  • Université de Bretagne-Sud, France

    Mounir Mesbah

  • Dartmouth College, USA

    Bernard F. Cole

  • Harvard University, USA

    Mei-Ling Ting Lee

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