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Benefit Sharing

From Biodiversity to Human Genetics

  • Book
  • © 2013

Overview

Editors:
  1. Doris Schroeder

    1. Centre for Professional Ethics, University of Central Lancashire, Preston, United Kingdom

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    You can also search for this editor in PubMed   Google Scholar

  2. Julie Cook Lucas

    1. Centre for Professional Ethics, University of Central Lancashire, Preston, United Kingdom

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    You can also search for this editor in PubMed   Google Scholar

  • First comprehensive analysis of benefit sharing in relation to human biological resources
  • The result of global collaboration between academics, policy advisors and policy makers from developed and developing countries
  • Provides urgently needed recommendations for an unresolved problem in international research ethics and governance
  • Multi-disciplinary, global authorship and case study approach make book suitable for wide audience

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Table of contents (10 chapters)

  1. Front Matter

    Pages i-xxvii
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  2. Benefit Sharing: From Biodiversity to Human Genetics—An Introduction

    • Doris Schroeder, Julie Cook Lucas
    Pages 1-7

  3. Exploring Central Philosophical Concepts in Benefit Sharing: Vulnerability, Exploitation and Undue Inducement

    • Gardar Arnason, Doris Schroeder
    Pages 9-31

  4. Legal Frameworks for Benefit Sharing: From Biodiversity to Human Genomics

    • Pamela Andanda, Doris Schroeder, Sachin Chaturvedi, Emezat Mengesha, Tim Hodges
    Pages 33-64

  5. Sharing Traditional Knowledge: Who benefits? Cases from India, Nigeria, Mexico and South Africa

    • Julie Cook Lucas, Doris Schroeder, Roger Chennells, Sachin Chaturvedi, Dafna Feinholz
    Pages 65-93

  6. Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia

    • Julie Cook Lucas, Doris Schroeder, Gardar Arnason, Pamela Andanda, Joshua Kimani, Veronique Fournier et al.
    Pages 95-127

  7. Fair for Women? A Gender Analysis of Benefit Sharing

    • Julie Cook Lucas, Fatima Alvarez Castillo
    Pages 129-151

  8. Promoting an Inclusive Approach to Benefit Sharing: Expanding the Scope of the CBD?

    • Sachin Chaturvedi, Sara Crager, Miltos Ladikas, Vasantha Muthuswami, Yeyang Su, Huanming Yang
    Pages 153-177

  9. Realizing Benefit Sharing: Is There a Role for Ethics Review?

    • Doris Schroeder, Eugenijus Gefenas, Roger Chennells, Veronique Fournier, Dafna Feinholz, Giorgio Sirugo
    Pages 179-201

  10. Beyond Benefit Sharing: Steps Towards Realizing the Human Right to Health

    • Aidan Hollis, Thomas Pogge, Doris Schroeder
    Pages 203-216

  11. Towards Best Practice for Benefit Sharing Involving Access to Human Biological Resources: Conclusions and Recommendations

    • Doris Schroeder, Julie Cook Lucas
    Pages 217-229

  12. Back Matter

    Pages 231-234
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Keywords

About this book

Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.

Editors and Affiliations

  • Centre for Professional Ethics, University of Central Lancashire, Preston, United Kingdom

    Doris Schroeder, Julie Cook Lucas

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