The International Library of Ethics, Law and Technology

Biobanks and Tissue Research

The Public, the Patient and the Regulation

Editors: Lenk, Christian, Sándor, Judit, Gordijn, Bert (Eds.)

  • Comprehensive ethical and legal perspective
  • Focus on the most important discussions in the field
  • Targeting of “hot topics” like forensic research and biobanking Unique, European perspective
  • Renowned group of international authors
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eBook $139.00
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  • ISBN 978-94-007-1673-5
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  • Immediate eBook download after purchase
Hardcover $179.00
price for USA
  • ISBN 978-94-007-1672-8
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
Softcover $179.00
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  • ISBN 978-94-007-3731-0
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
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About this book

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.

 

Reviews

From the reviews:

“Address the legal and policy status of biobanking and tissue research, primarily in Europe … . Since biobanking and tissue research engage such diverse disciplines as health and privacy law, biomedical and IT fields, the book’s audience is likewise diverse. … provides a unique resource for Europeans and non-Europeans … . especially important for those who work on these issues internationally, and those who may not be familiar with the diversity of approaches and insights that can be learned from the European systems.” (Stephanie Solomon, Doody’s Review Service, December, 2011)

Table of contents (14 chapters)

  • Introduction

    Lenk, Christian (et al.)

    Pages 3-16

  • Public Trust and Public Bodies: The Regulation of the Use of Human Tissue for Research in the United Kingdom

    Kent, Julie (et al.)

    Pages 17-35

  • Biobanks and Research: Scientific Potential and Regulatory Challenge

    Elger, Bernice S. (et al.)

    Pages 37-52

  • A Sense of Entitlement: Individual vs. Public Interest in Human Tissue

    Hoppe, Nils

    Pages 53-64

  • Social Aspects of Biobanking: Beyond the Public/Private Distinction and Inside the Relationship Between the Body and Identity

    Neresini, Federico

    Pages 65-78

Buy this book

eBook $139.00
price for USA (gross)
  • ISBN 978-94-007-1673-5
  • Digitally watermarked, DRM-free
  • Included format: EPUB, PDF
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Hardcover $179.00
price for USA
  • ISBN 978-94-007-1672-8
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
Softcover $179.00
price for USA
  • ISBN 978-94-007-3731-0
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
Rent the ebook  
  • Rental duration: 1 or 6 month
  • low-cost access
  • online reader with highlighting and note-making option
  • can be used across all devices
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Bibliographic Information

Bibliographic Information
Book Title
Biobanks and Tissue Research
Book Subtitle
The Public, the Patient and the Regulation
Editors
  • Christian Lenk
  • Judit Sándor
  • Bert Gordijn
Series Title
The International Library of Ethics, Law and Technology
Series Volume
8
Copyright
2011
Publisher
Springer Netherlands
Copyright Holder
Springer Science+Business Media B.V.
eBook ISBN
978-94-007-1673-5
DOI
10.1007/978-94-007-1673-5
Hardcover ISBN
978-94-007-1672-8
Softcover ISBN
978-94-007-3731-0
Series ISSN
1875-0044
Edition Number
1
Number of Pages
VIII, 238
Topics