Comparative Issues in the Governance of Research Biobanks

Property, Privacy, Intellectual Property, and the Role of Technology

Editors: Pascuzzi, Giovanni, Izzo, Umberto, Macilotti, Matteo (Eds.)

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  • ISBN 978-3-642-33116-9
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Hardcover $189.00
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About this book

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.

Table of contents (19 chapters)

  • Introduction: A Law and Technology Approach to the Law of Biobanking

    Izzo, Umberto (et al.)

    Pages 1-7

  • Research Biobanks Meet Synthetic Biology: Autonomy and Ownership

    Munzer, Stephen R.

    Pages 11-39

  • Regulating Biobanks: Another Triple Bottom Line

    Brownsword, Roger

    Pages 41-62

  • Health Insurance, Employment, and the Human Genome: Genetic Discrimination and Biobanks in the United States

    Feldman, Eric A. (et al.)

    Pages 63-75

  • Ownership of Biomedical Information in Biobanks

    Hawkins, Naomi (et al.)

    Pages 77-86

Buy this book

eBook $149.00
price for USA (gross)
  • ISBN 978-3-642-33116-9
  • Digitally watermarked, DRM-free
  • Included format: EPUB, PDF
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Hardcover $189.00
price for USA
  • ISBN 978-3-642-33115-2
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
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Bibliographic Information

Bibliographic Information
Book Title
Comparative Issues in the Governance of Research Biobanks
Book Subtitle
Property, Privacy, Intellectual Property, and the Role of Technology
Editors
  • Giovanni Pascuzzi
  • Umberto Izzo
  • Matteo Macilotti
Copyright
2013
Publisher
Springer-Verlag Berlin Heidelberg
Copyright Holder
Springer-Verlag Berlin Heidelberg
eBook ISBN
978-3-642-33116-9
DOI
10.1007/978-3-642-33116-9
Hardcover ISBN
978-3-642-33115-2
Edition Number
1
Number of Pages
VIII, 339
Number of Illustrations and Tables
7 b/w illustrations
Topics