Ethical Reasoning in Big Data

1. Front Matter

   Pages i-x

   PDF

2. Introduction

   • Jeff Collmann, Sorin Adam Matei

   Pages 1-7

3. Applying a Contextual Analysis of Privacy in Big Data Research

   1. Front Matter

      Pages 9-9

      PDF

   2. A Theoretical Framework for Ethical Reflection in Big Data Research

      • Michael Steinmann, Sorin Adam Matei, Jeff Collmann

      Pages 11-27

4. Ethical Reasoning Beyond Privacy in Big Data

   1. Front Matter

      Pages 29-29

      PDF

   2. The Privacy Preferences of Americans

      • Lee Rainie

      Pages 31-41

   3. Engaging the Public in Ethical Reasoning About Big Data

      • Justin Anthony Knapp

      Pages 43-52

   4. The Ethics of Large-Scale Genomic Research

      • Benjamin E. Berkman, Zachary E. Shapiro, Lisa Eckstein, Elizabeth R. Pike

      Pages 53-69

   5. Neurotechnological Convergence and “Big Data”: A Force-Multiplier Toward Advancing Neuroscience

      • Diane DiEuliis, James Giordano

      Pages 71-80

   6. Data Ethics—Attaining Personal Privacy on the Web

      • Lisa Singh

      Pages 81-90

5. Institutionalizing Ethical Reasoning About Big Data

   1. Front Matter

      Pages 91-91

      PDF

   2. Technology for Privacy Assurance

      • J. C. Smart

      Pages 93-114

   3. Institutionalizing Ethical Reasoning: Integrating the ASA’s Ethical Guidelines for Professional Practice into Course, Program, and Curriculum

      • Rochelle E. Tractenberg

      Pages 115-139

   4. Data Management Plans, Institutional Review Boards, and the Ethical Management of Big Data About Human Subjects

      • Jeff Collmann, Kevin T. FitzGerald, Samantha Wu, Joel Kupersmith, Sorin Adam Matei

      Pages 141-184

   5. Integrating Ethical Reasoning into Preparation for Participation to Work in/with Big Data Through the Stewardship Model

      • Rochelle E. Tractenberg

      Pages 185-192

This book springs from a multidisciplinary, multi-organizational, and multi-sector conversation about the privacy and ethical implications of research in human affairs using big data. The need to cultivate and enlist the public’s trust in the abilities of particular scientists and scientific institutions constitutes one of this book’s major themes. The advent of the Internet, the mass digitization of research information, and social media brought about, among many other things, the ability to harvest – sometimes implicitly – a wealth of human genomic, biological, behavioral, economic, political, and social data for the purposes of scientific research as well as commerce, government affairs, and social interaction. What type of ethical dilemmas did such changes generate? How should scientists collect, manipulate, and disseminate this information? The effects of this revolution and its ethical implications are wide-ranging. This book includes the opinions of myriad investigators, practitioners, and stakeholders in big data on human beings who also routinely reflect on the privacy and ethical issues of this phenomenon. Dedicated to the practice of ethical reasoning and reflection in action, the book offers a range of observations, lessons learned, reasoning tools, and suggestions for institutional practice to promote responsible big data research on human affairs. It caters to a broad audience of educators, researchers, and practitioners. Educators can use the volume in courses related to big data handling and processing. Researchers can use it for designing new methods of collecting, processing, and disseminating big data, whether in raw form or as analysis results. Lastly, practitioners can use it to steer future tools or procedures for handling big data. As this topic represents an area of great interest that still remains largely undeveloped, this book is sure to attract significant interest by filling an obvious gap in currently available literature. 

• Big data abuse
• Big data education
• Big data ethics
• Commercialization of big data
• Ethics and genomic research
• Politics and big data
• Privacy and big data
• Privacy in analyzing social media
• Socio-technical informatics

“Ethical reasoning in big data: an exploratory analysis is a timely book on the ethical aspects of big data. … Big data analytics is a very important tool for future society. Used properly, it can benefit generations to come. Keep in mind that governments and corporations could also use it to invade people’s privacy and well being. Therefore, everyone should keep an eye on big data development.” (R. S. Chang, Computing Reviews, March, 2017)

“This book tries to analyze the meaning of privacy … . It looks at specific domains, including the American public’s attitudes; ways to build trust while analyzing large bodies of data; genomics research; and personal privacy on the internet. … Summing Up: Recommended. All readers.” (H. Levkowitz, Choice, Vol. 54 (6), February, 2017)

“Nearly 20 US-affiliated researchers contributed ten chapters to this collection, which originated at ‘Privacy in the Infosphere: an NSF-Sponsored Workshop on Ethical Analysis of Big Data,’ at GeorgetownUniversity. … a variety of practitioners, researchers, and students will find this material of interest. … big data is here and we must think about the ethical implications of how data is collected, stored, and utilized. This is the strength of this work.” (Brad Reid, Computing Reviews, computingreviews.com, October, 2016)

• Georgetown University, WASHINGTON, USA

  Jeff Collmann

• Purdue University, West Lafayette, USA

  Sorin Adam Matei

Sorin Adam Matei
Purdue University
100 N. University Drive
West Lafayette, IN 46077

Jeff Collmann
Office of the Senior Vice President for Research
Georgetown University
37th and O Streets, N.W.
Washington, DC 20015

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