Handbook of Long Term Care of The Childhood Cancer Survivor

1. Front Matter

   Pages i-xxiii

   PDF

2. Surveillance of the Survivor

   1. Front Matter

      Pages 1-1

      PDF

   2. The Long and Winding Road: Transitions in Care for the Childhood Cancer Survivor

      • Rajkumar Venkatramani, David R. Freyer

      Pages 3-16

   3. Developmental Considerations in the Transition from Child and Adolescent to Adult Survivorship

      • Cynthia A. Gerhardt, Marrit Annika Tuinman, Kathryn Vannatta

      Pages 17-24

   4. The European Experience of Establishing Guidelines for Surveillance of the Childhood Cancer Survivor

      • Roderick Skinner, Riccardo Haupt, Lars Hjorth, Leontien Kremer, Renée L. Mulder

      Pages 25-35

3. Surveillance of Medical Late Effects

   1. Front Matter

      Pages 37-37

      PDF

   2. Long-Term Follow-Up Roadmaps by Disease and Treatment

      • Lilibeth R. Torno, Janet Hager

      Pages 39-51

   3. Central Nervous System

      • Wei-Ping Violet Shen

      Pages 53-74

   4. Endocrine System

      • Wassim Chemaitilly

      Pages 75-92

   5. Cardiovascular System

      • Nita Doshi, Vivian I. Franco, Anthony C. Chang, Steven E. Lipshultz

      Pages 93-110

   6. Pulmonary System

      • Tara O. Henderson

      Pages 111-119

   7. Renal, Genitourinary, and Reproductive Systems

      • William Sohn, F. Elena Marshall, Krishnansu S. Tewari, Antoine Khoury

      Pages 121-144

   8. Gastrointestinal and Hepatic Systems

      • Jacqueline Casillas, Amy Jacobson

      Pages 145-154

   9. Musculoskeletal System

      • Tao Ji, James B. Hayden, Bang H. Hoang

      Pages 155-170

   10. Eye, Ear and Oral Health

       • Jacqueline Casillas, Amy Jacobson

       Pages 171-178

   11. Hematopoietic Stem Cell Transplant

       • Paul Nathan, Adam Gassas, Jonathan Wasserman

       Pages 179-208

   12. Second Malignant Neoplasms

       • Smita Bhatia

       Pages 209-220

4. Neuropsychological Late Effects

   1. Front Matter

      Pages 221-221

      PDF

   2. Neuropsychological Outcomes in Children with Acute Lymphoblastic Leukemia

      • Peter A. Dodzik, Randy Fulton

      Pages 223-247

   3. Neuropsychological Effects of Pediatric Brain Tumors and Associated Treatment

      • Karin S. Walsh, Iris Paltin

      Pages 249-262

This authoritative reference examines in depth the myriad challenges facing pediatric cancer survivors and proposes a robust framework for structured follow-up of these patients through adulthood. Approaches to long-term follow-up include both established models of care and targeted models of lifelong surveillance of late effects by bodily systems and neurological outcomes. Sections devoted to quality of life and re-entry after treatment focus on key concerns such as health risk behaviors, school and career issues, psychological challenges, and care disparities. And a robust resources section adds extra usefulness to the expert coverage.

Among the Handbook's topics:

• Developmental considerations in the transition from child and adolescent to adult survivorship.
• Long-term follow-up roadmaps by disease and treatment.
• Neuropsychological effects of pediatric brain tumors and associated treatment.
• Building resiliency in childhood cancer survivors: aclinician’s perspective.
• School issues and educational strategies for survivors of childhood cancer.
• Educating and preparing the childhood cancer survivor for long-term care: a curriculum model for cancer centers.

A work of rare scope, scholarship, and clinical acumen, the Handbook of Long-Term Care of the Childhood Cancer Survivor is a rewarding, practice-building resource essential to a wide range of healing professionals, including primary care physicians, pediatricians, oncologists, nurses, psychologists, neuropsychologists, child psychologists, and licensed therapists.             

• Acute lymphocytic leukemia
• Astrocytoma
• Brain tumor
• Brainstem glioma
• Cancer Survivorship
• Chemobrain
• Childhood Cancer
• Craniopharyngioma
• Ependymoma
• Fatigue in cancer survivors
• Late effects of cancer
• Limb salvage
• Lymphoma
• Medulloblastoma
• Neuroblastoma
• Pain in cancer survivors
• Phantom limb pain
• Quality of life
• Sensory loss
• Stem cell transplant

“This book provides evidenced-based reporting of the issues facing childhood cancer survivors. The information is accurate, and the book is detail-oriented and comprehensive. There are useful tables and lists for reference materials and for teaching. There are many manuscripts but few books on childhood cancer survivor care. A book compiling this data is useful for teaching and as a reference for healthcare providers.” (Linda J. Butros, Doody’s Book Reviews, February, 2016)

• Department of Pediatric Psychology, CHOC Children’s Hospital, Neuropsychology Services, Orange, Newport Beach, USA

  Grace A. Mucci

• Division of Oncology, CHOC After Cancer Treatment Survivorship Program, CHOC Children’s Hospital, University of California, Irvine, Irvine, Orange, USA

  Lilibeth R. Torno

Grace A. Mucci, Ph.D., ABPdN is Coordinator of Neuropsychology Services at CHOC Children's Hospital in Orange, California and Director at Neuropsychology Services in Newport Beach, California. She received her doctorate in clinical psychology from the California School of Professional Psychology in 1995. Her primary research interests involve the neurocognitive correlates in epilepsy and cancer. Dr Mucci is a diplomate of the American Board of Pediatric Neuropsychology and a fellow of the American Academy of Pediatric Neuropsychology. She is a member of the American Psychological Association and the National Academy of Neuropsychology.
Lilibeth R. Torno, MD, is Clinical Director of Oncology Outpatient Services at CHOC Children’s Hospital in Orange, California, and Clinical Faculty, University of California, Irvine. She leads the ACTS (After the Cancer Treatment Survivorship) program as well as the Ambulatory Care Services at the CHOC Cancer Institute. She is boardcertified in pediatrics and pediatric hematology/oncology. Dr. Torno completed her fellowship training at Children's Hospital of Los Angeles. She completed her residency at CHOC. She attended medical school at University of Santo Tomas, Manila, Philippines.

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