The Effects of Autism on the Family

1. Front Matter

   Pages i-xx

   PDF

2. Introduction

   1. Front Matter

      Pages 1-1

      PDF

   2. Professional Attitudes toward Parents

      • Eric Schopler, Gary B. Mesibov

      Pages 3-17

3. Overview

   1. Front Matter

      Pages 19-19

      PDF

   2. Handicapped Children and Their Families

      • Edward Zigler

      Pages 21-39

   3. Research Concerning Families of Children with Autism

      • Dennis P. Cantwell, Lorian Baker

      Pages 41-63

   4. Helping Autistic Children through Their Parents

      • Eric Schopler, Gary B. Mesibov, R. Hal Shigley, Anne Bashford

      Pages 65-81

4. Parents as Advocates

   1. Front Matter

      Pages 83-83

      PDF

   2. Developmental Changes in Families with Autistic Children

      • Mary S. Akerley

      Pages 85-98

   3. The Role of the National Society in Working with Families

      • Frank Warren

      Pages 99-115

   4. The Professional’s Role as Advocate

      • Siegfried M. Pueschel, James C. Bernier

      Pages 117-128

   5. Advocacy

      • James E. Surratt

      Pages 129-141

5. Parents as Trainees

   1. Front Matter

      Pages 143-143

      PDF

   2. Parents as Behavior Therapists for Their Autistic Children

      • David J. Kolko

      Pages 145-162

   3. A Training Program for Families of Children with Autism

      • Martin A. Kozloff

      Pages 163-186

   4. Training Parent-Child Interactions

      • Laura Schreibman, Robert L. Koegel, Debra L. Mills, John C. Burke

      Pages 187-205

   5. Behavior Therapists Look at the Impact of an Autistic Child on the Family System

      • Sandra L. Harris, Michael D. Powers

      Pages 207-224

6. Parents as Trainers

   1. Front Matter

      Pages 225-225

      PDF

   2. My Great Teachers

      • Eric Schopler

      Pages 227-232

   3. Parents as Trainers of Legislators, Other Parents, and Researchers

      • Ruth Christ Sullivan

      Pages 233-246

As the oldest statewide program serving autistic people in the United States, North Carolina's Division TEACCH (Treatment and Education of Autistic and related Communication handicapped CHildren) has had a major impact on ser­ vices for these people and their families. As we move into our second decade, we are frequently questioned about all aspects of our procedures, techniques, and program. Of all the questions that are asked, however, the one that comes up most frequently and seems to set our program apart from others concerns the ways in which we work with families. To help answer this question we identified what we have found to be the major components in our parent-professional relationships, and we elaborate on these with the most current research informa­ tion, clinical insights, and community knowledge available through the expertise of our distinguished contributors. Our purpose was to collect the most recent information and to organize the resulting volume along the outlines of the par­ ent-professional relationship found most important in the TEACCH program. Thus, the four main sections of the book include these four major ways profes­ sionals work with parents: as their advocates, their trainers, their trainees, and their reciprocal emotional support source. To the extent this effort was success­ ful, we acknowledge that it is easier to organize book chapters along these dimensions than it is to provide their implementation in the field.

• Burnout
• Training
• coping
• emotion
• interaction

• Division TEACCH, University of North Carolina School of Medicine, Chapel Hill, USA

  Eric Schopler, Gary B. Mesibov

Policies and ethics