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  • Textbook
  • © 2007

Case Studies in Ethics and HIV Research

  • Authorship by an HIV researcher (S. Loue) and a community leader in HIV policy, advocacy, and service provision (E. Pike), which will provide readers with a unique perspective on the conduct of HIV research

  • Case Studies provided by HIV researchers, which will allow readers to understand better how ethical issues arise in HIV research, how to identify such issues, and the range of possibilities for their resolution

  • Consideration of issues arising in a domestic and an international context

  • Emphasis on the interplay between methodology and ethical and legal issues

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Table of contents (18 chapters)

  1. Front Matter

    Pages I-XII
  2. U.S. Regulations and HIV-Related Research

    • Sana Loue, Earl C. Pike
    Pages 15-22
  3. The Informed Consent Process

    • Sana Loue, Earl C. Pike
    Pages 23-35
  4. Working with Boards and Committees: ECs, DSMBs, CABs

    • Sana Loue, Earl C. Pike
    Pages 37-55
  5. Researcher-Participant Relations

    • Sana Loue, Earl C. Pike
    Pages 57-68
  6. Researcher-Community Relations

    • Sana Loue, Earl C. Pike
    Pages 69-78
  7. Recruiting for HIV-Related Research

    • Sana Loue, Earl C. Pike
    Pages 79-102
  8. Clinical Trials

    • Sana Loue, Earl C. Pike
    Pages 103-135
  9. Observational Studies

    • Sana Loue, Earl C. Pike
    Pages 137-157
  10. Behavioral Intervention Studies

    • Sana Loue, Earl C. Pike
    Pages 159-174
  11. Ethical Issues in Multicenter/Multisite Studies

    • Sana Loue, Earl C. Pike
    Pages 175-203
  12. HIV Research with Children

    • Sana Loue, Earl C. Pike
    Pages 205-220
  13. HIV-Related Research with Cognitively Impaired Persons

    • Sana Loue, Earl C. Pike
    Pages 221-244
  14. Studies with Minority Populations

    • Sana Loue, Earl C. Pike
    Pages 245-260
  15. Research in International Settings

    • Sana Loue, Earl C. Pike
    Pages 261-284
  16. Activity-Defined Populations

    • Sana Loue, Earl C. Pike
    Pages 285-301
  17. Training the Next Generation of Researchers

    • Sana Loue, Earl C. Pike
    Pages 303-319
  18. Training Community

    • Sana Loue, Earl C. Pike
    Pages 321-338
  19. Back Matter

    Pages 339-343

About this book

This book represents the compilation of efforts by researchers across the country, each of whom is dedicated not only to the prevention and elimination of HIV infection, but also to the conduct of research according to the highest ethical pr- ciples. The authors of the case studies have graciously agreed to share their ex- riences in conducting research, which raised questions for them and will motivate us to further inquiry and examination. The views that are presented in this text are diverse and readers may or may not agree with the analyses of the editor-authors or the authors of the case studies. We do not aim for agreement among readers, but rather, the studied analysis of the ethical issues raised in the conduct of HIV research. We clearly emphasize the protection of the individuals participating in such research, as well as their communities, and view research not as an enterprise undertaken by researchers, but rather as a negotiated exchange between researchers, participants, and c- munities that also involves interplay with funding sources, ancillary partners, and governments.

Reviews

From the reviews:

"The use of case studies makes this a rich book that contributes to the research ethics literature. The discussion of the cases and the ethical issues each case raises give readers a better appreciation of the breadth and depth of the relevant ethical and scientific concerns."  -Ana Smith Iltis, Ph.D., St. Louis University Center for Health Care Ethics, DOODY REVIEW                                                             

"Loue (Case Western Reserve Univ.) and Pike (AIDS Taskforce of Greater Cleveland) present a series of reflections surrounding HIV/AIDS research. … The chapter topics and case studies are apt, and the analyses throughout are thought-provoking. The volume is well suited for use by science and medical students. … Summing Up: Recommended. Upper-division undergraduates through professionals/practitioners." -R. E. Kraft, CHOICE, Vol. 45 (7), 2008

"I am not sure who would want to read a more comprehensive treatment of the subject than this work. ... Never was a treatise on research ethics more needed." -Philip E. Veenhuis, MD, MPH. JAMA. Vol. 300(5), 2008

"For the first time, scholars tackle the moral complexities of the work in which HIV researchers have been engaged and highlight implications of the decisions being made in the field. These are decisions that can literally have life and death implications for those who participate in HIV-related research. ... Loue and Pike have found a way to establish a united approach, addressing these issues through highlighting their commonly held beliefs and perspectives, and producing a beautifully orchestrated volume where the realities of science dance in perfect tempo with the needs for protecting human rights.  ... important reading for numerous audiences ..." -Julianne M. Serovich, Ph.D., Columbus, Ohio. The Journal of Legal Medicine, 29 (2), 2008

Authors and Affiliations

  • Case Western Reserve University, Cleveland

    Sana Loue

  • AIDS Taskforce of Greater Cleveland, Cleveland

    Earl C. Pike

About the authors

Dr. Loue is known internationally for HIV research with minority communities, as well as research ethics and epidemiology. Dr. Loue has written books focusing on Epidemiology, Disease Prevention, and Sexual Practices.

Earl Pike has been engaged in community-based HIV service and prevention program provision and management for over 20 years, and directs Ohio's largest HIV/AIDS service, education, and advocacy.

Bibliographic Information

  • Book Title: Case Studies in Ethics and HIV Research

  • Authors: Sana Loue, Earl C. Pike

  • DOI: https://doi.org/10.1007/978-0-387-71362-5

  • Publisher: Springer New York, NY

  • eBook Packages: Medicine, Medicine (R0)

  • Copyright Information: Springer-Verlag US 2007

  • Hardcover ISBN: 978-0-387-71361-8Published: 17 July 2007

  • Softcover ISBN: 978-1-4419-4393-4Published: 04 November 2010

  • eBook ISBN: 978-0-387-71362-5Published: 05 October 2007

  • Edition Number: 1

  • Number of Pages: XII, 344

  • Number of Illustrations: 7 b/w illustrations

  • Topics: Theory of Medicine/Bioethics, Public Health, Health Promotion and Disease Prevention, Epidemiology

Buy it now

Buying options

eBook USD 49.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book USD 64.95
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book USD 64.95
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Other ways to access