Handbook of Children with Special Health Care Needs

1. Front Matter

   Pages 1-1

   PDF

2. Policy: Its History, Intentions, and Consequences for Children with Special Health Care Needs

   • Donna Petersen

   Pages 1-22

3. Severe Communication Disorders

   • Carol A. Page, Patricia D. Quattlebaum

   Pages 23-46

4. Attention-Deficit/Hyperactivity Disorder (ADHD), Perceived Competence, and Self-Worth: Evidence and Implications for Students and Practitioners

   • Andrew J. Martin

   Pages 47-72

5. Quality of Life in Children Diagnosed with Specific Learning Disability or Attention-Deficit/Hyperactivity Disorder

   • Sunil Karande

   Pages 73-85

6. Children and Adolescents with Mobility Limitations

   • Ann I. Alriksson-Schmidt, Judy K. Thibadeau

   Pages 87-105

7. Rethinking Deaf Learners’ Education: A Human Rights Issue

   • Irma M. Munoz-Baell, Carlos Alvarez-Dardet, M. Teresa Ruiz-Cantero, Emilio Ferreiro-Lago

   Pages 107-130

8. Childhood Eye Disorders and Visual Impairment

   • Jugnoo S. Rahi, A. Lola Solebo

   Pages 131-152

9. Evaluating School-Aged Children with Visual Disabilities

   • Diane Beaseley Whitaker, Elana M. Scheiner

   Pages 153-167

10. Oral Health Access Issues for Children with Special Health Care Needs

    • Nancy J. Murray, Mary Anderson Hartley

    Pages 169-188

11. Tuberculosis: The Special Needs of Children

    • Elisabetta Walters, Elizabeth Lutge, Robert P. Gie

    Pages 189-211

12. Children with Multiple Sclerosis

    • Yann Mikaeloff

    Pages 213-230

13. Fetal Alcohol Spectrum Disorders: Review of Teratogenicity, Diagnosis and Treatment Issues

    • Jacquelyn Bertrand, Elizabeth Parra Dang

    Pages 231-258

14. Newborn Screening for Congenital Disorders in Routine and Research

    • Bent Nørgaard Pedersen, David Michael Hougaard

    Pages 259-269

15. Genetic and Metabolic Conditions for Children with Special Health Care Needs

    • David Hollar

    Pages 271-287

16. Development from Conception through Adolescence: Physiological and Psychosocial Factors Impacting Children with Special Health Care Needs

    • David Hollar

    Pages 289-306

17. Using Population-Based Survey Data to Monitor the Health of Children and Youth with Special Health Care Needs and Disabilities

    • Willi Horner-Johnson, Kathleen Newton

    Pages 307-334

18. Secondary Conditions in Youth with Disabilities

    • Jennifer L. Rowland

    Pages 335-351

19. Accessible Substance Abuse Prevention for All Children

    • Jo Ann Ford, Judson Workman, Navid Masoudi, Mary Huber, Theresa Mayer, Karel Pancocha

    Pages 353-368

20. Research Methods and Epidemiology for Children with Special Health Care Needs

    • David Hollar, Arun Karpur

    Pages 369-382

Children with chronic conditions, developmental disorders, and birth defects represent a sizeable minority of American children—as many as one in five. Often their families have financial or other issues limiting their access to appropriate care, thus limiting their adult prospects as well. Compounding the problem, many valuable resources concerning this population are difficult to access although they may be critical to the researchers, practitioners, and policymakers creating standards for quality care and services. In response, the Handbook of Children with Special Health Care Needs assembles research, applied, and policy perspectives reflecting the range of children’s problems requiring special services. Widely studied conditions (e.g., communication disorders, substance abuse) and those receiving lesser attention (e.g., tuberculosis) are covered, as are emerging ideas such as the “medical home” concept of continuity of care. Its interdisciplinary outlook makes the Handbook of Children with Special Health Care Needs a vital, forward-looking text for developmental psychologists, pediatricians, early childhood and special education researchers and practitioners, disability researchers, policymakers, and advocates, and providers for children with special health care needs.

• ADHD
• AERA
• Adolescents
• Autism
• Birth Defects
• CSHCN
• Disability
• Maternal and Child Health
• Public Health Policy
• Special Education
• Special Needs
• biopsychosocial

• Chapel Hill, University of North Carolina, Chapel Hill, USA

  David Hollar

David Hollar, PhD is an Assistant Professor in the Department of Medicine, University of North Carolina School of Medicine, Chapel Hill. At UNC, he designs and analyzes educational research projects involving assessments of medical student and resident performances in simulated environments. He also performs epidemiological research on risk behaviors and diagnostic health conditions for persons with disabilities, using secondary longitudinal clinical and public health databases. He is an active member of the American Educational Research Association, the American Public Health Association (Disability Section), and is a member of the editorial board of the Maternal and Child Health Journal, published by Springer.

Policies and ethics