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Medicine - Surgery | Biobanks and Tissue Research - The Public, the Patient and the Regulation

Biobanks and Tissue Research

The Public, the Patient and the Regulation

Lenk, Christian, Sándor, Judit, Gordijn, Bert (Eds.)

2011, VIII, 238 p.

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  • Comprehensive ethical and legal perspective
  • Focus on the most important discussions in the field
  • Targeting of “hot topics” like forensic research and biobanking Unique, European perspective
  • Renowned group of international authors

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.

 

Content Level » Research

Keywords » Biobank - Ethics - Law - Patient Rights - Tissue Research

Related subjects » Biomedical Sciences - Cell Biology - Surgery

Table of contents 

 Biobanks, tissue research and the public


 Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom
 Julie Kent, Ruud ter Meulen

 Biobanks and research: scientific promise and regulatory challenge
 Bernice S. Elger, Nikola Biller-Andorno

 A sense of entitlement: individual vs. public interest in human tissue
 Nils Hoppe

 Social aspects of biobanking: Beyond the public/private distinction and inside the relationship between the body and identity
 Federico Neresini

 The Rights of donors and patients


 One sample, one share! A proposal to redress an inequity with equity
 Jasper A. Bovenberg

 Research on human biological materials: What consent is needed, and when
  Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Serepkaite

 Reconsidering consent and biobanking
 Emma Bullock, Heather Widdows

 What’s wrong with forensic uses of biobanks?
 Claudio Tamburrini
 Regulation of tissue research


 A unified European approach on tissue research and biobanking? A comparison
 Katharina Beier, Christian Lenk

 Ireland and the United Kingdom’s approaches to regulation of research involving human tissue
 Elizabeth Yuko, Adam McAuley, Bert Gordijn

 Legal and ethical aspects of biobanks for research in the European-
 Mediterranean area
 Renzo Pegoraro, Allesandra Bernardi, Fabrizio Turoldo

 The circulation of human body parts and products: when exclusive property rights mask the issue of access
 Florence Bellivier, Christine Noiville

 The question of anonymity and privacy in biobanking
 Judit Sándor, Petra Bárd

 What’s wrong with forensic uses of biobanks?
 Claudio Tamburrini
 Regulation of tissue research


 A unified European approach on tissue research and biobanking? A comparison
 Katharina Beier, Christian Lenk

 Ireland and the United Kingdom’s approaches to regulation of research involving human tissue
 Elizabeth Yuko, Adam McAuley, Bert Gordijn

 Legal and ethical aspects of biobanks for research in the European-
 Mediterranean area
 Renzo Pegoraro, Allesandra Bernardi, Fabrizio Turoldo

 The circulation of human body parts and products: when exclusive property rights mask the issue of access
 Florence Bellivier, Christine Noiville

 The question of anonymity and privacy in biobanking
 Judit Sándor, Petra Bárd

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