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Biobanks and Tissue Research

The Public, the Patient and the Regulation

  • Book
  • © 2011

Overview

Editors:
  1. Christian Lenk

    1. Göttingen, Germany

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  2. Judit Sándor

    1. Central European University, Budapest, Hungary

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    You can also search for this editor in PubMed   Google Scholar

  3. Bert Gordijn

    1. Dublin City University, Dublin 9, Ireland

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  • Comprehensive ethical and legal perspective
  • Focus on the most important discussions in the field
  • Targeting of “hot topics” like forensic research and biobanking Unique, European perspective
  • Renowned group of international authors

Part of the book series: The International Library of Ethics, Law and Technology (ELTE, volume 8)

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Table of contents (14 chapters)

  1. Front Matter

    Pages i-viii
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  2. Biobanks, Tissue Research and the Public

    1. Front Matter

      Pages 1-1
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    2. Introduction

      • Christian Lenk, Judit Sándor, Bert Gordijn
      Pages 3-16

    3. Public Trust and Public Bodies: The Regulation of the Use of Human Tissue for Research in the United Kingdom

      • Julie Kent, Ruud ter Meulen
      Pages 17-35

    4. Biobanks and Research: Scientific Potential and Regulatory Challenge

      • Bernice S. Elger, Nikola Biller-Andorno
      Pages 37-52

    5. A Sense of Entitlement: Individual vs. Public Interest in Human Tissue

      • Nils Hoppe
      Pages 53-64

    6. Social Aspects of Biobanking: Beyond the Public/Private Distinction and Inside the Relationship Between the Body and Identity

      • Federico Neresini
      Pages 65-78

  3. The Rights of Donors and Patients

    1. Front Matter

      Pages 79-79
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    2. One Sample, One Share! A Proposal to Redress an Inequity with Equity

      • Jasper Adriaan Bovenberg
      Pages 81-94

    3. Research on Human Biological Materials: What Consent Is Needed, and When

      • Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Serepkaite
      Pages 95-110

    4. Reconsidering Consent and Biobanking

      • Emma Bullock, Heather Widdows
      Pages 111-125

    5. What’s Wrong with Forensic Uses of Biobanks?

      • Claudio Tamburrini
      Pages 127-140

  4. Regulation of Tissue Research

    1. Front Matter

      Pages 141-141
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    2. A Unified European Approach on Tissue Research and Biobanking? A Comparison

      • Katharina Beier, Christian Lenk
      Pages 143-164

    3. Ireland and the United Kingdom’s Approaches to Regulation of Research Involving Human Tissue

      • Elizabeth Yuko, Adam McAuley, Bert Gordijn
      Pages 165-183

    4. Legal and Ethical Aspects of Biobanks for Research in the European-Mediterranean Area

      • Renzo Pegoraro, Alessandra Bernardi, Fabrizio Turoldo
      Pages 185-200

    5. The Circulation of Human Body Parts and Products: When Exclusive Property Rights Mask the Issue of Access

      • Florence Bellivier, Christine Noiville
      Pages 201-211

    6. Anonymity and Privacy in Biobanking

      • Judit Sándor, Petra Bárd
      Pages 213-230

  5. Back Matter

    Pages 231-238
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Keywords

About this book

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.

Reviews

From the reviews:

“Address the legal and policy status of biobanking and tissue research, primarily in Europe … . Since biobanking and tissue research engage such diverse disciplines as health and privacy law, biomedical and IT fields, the book’s audience is likewise diverse. … provides a unique resource for Europeans and non-Europeans … . especially important for those who work on these issues internationally, and those who may not be familiar with the diversity of approaches and insights that can be learned from the European systems.” (Stephanie Solomon, Doody’s Review Service, December, 2011)

Editors and Affiliations

  • Göttingen, Germany

    Christian Lenk

  • Central European University, Budapest, Hungary

    Judit Sándor

  • Dublin City University, Dublin 9, Ireland

    Bert Gordijn

Bibliographic Information

  • Book Title: Biobanks and Tissue Research

  • Book Subtitle: The Public, the Patient and the Regulation

  • Editors: Christian Lenk, Judit Sándor, Bert Gordijn

  • Series Title: The International Library of Ethics, Law and Technology

  • DOI: https://doi.org/10.1007/978-94-007-1673-5

  • Publisher: Springer Dordrecht

  • eBook Packages: Medicine, Medicine (R0)

  • Copyright Information: Springer Science+Business Media B.V. 2011

  • Hardcover ISBN: 978-94-007-1672-8Published: 30 July 2011

  • Softcover ISBN: 978-94-007-3731-0Published: 27 November 2013

  • eBook ISBN: 978-94-007-1673-5Published: 30 July 2011

  • Series ISSN: 1875-0044

  • Series E-ISSN: 1875-0036

  • Edition Number: 1

  • Number of Pages: VIII, 238

  • Topics: Transplant Surgery, Cell Biology, Biomedicine, general

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