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  • Conference proceedings
  • © 2012

Trust in Biobanking

Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology

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Table of contents (16 papers)

  1. Front Matter

    Pages 1-1
  2. Framing the Field of Biobanking and Trust

    1. Front Matter

      Pages 1-1
    2. Biobanking for Public Health

      • Angela Brand, Tobias Schulte, Nicole M. Probst-Hensch
      Pages 3-20
    3. Trading in Cold Blood?

      • Klaus Hoeyer
      Pages 21-41
    4. Biobanking

      • Cornelia Richter
      Pages 43-66
  3. Ethical Issues

    1. Front Matter

      Pages 67-67
    2. Which Duty First?

      • Peter Dabrock
      Pages 69-82
    3. Collection of Biospecimen Resources for Cancer Research

      • Johannes Huber, Esther Herpel, Frank Autschbach, Stephan Buse, Markus Hohenfellner
      Pages 97-110
  4. Legal Issues

    1. Front Matter

      Pages 111-111
    2. What is in a Clause?

      • Susan Wallace, Stephanie Lazor, Bartha Maria Knoppers
      Pages 113-126
    3. Once Given – Forever in a Biobank?

      • Bianka S. Dörr
      Pages 139-152
    4. Biobanks and the Law

      • Kathrin Nitschmann
      Pages 153-167
    5. Data Protection in Germany

      • Daniel Schneider
      Pages 169-187
    6. The Role of P3G in Encouraging Public Trust in Biobanks

      • Susan Wallace, Bartha Maria Knoppers
      Pages 189-196
  5. Social Issues

    1. Front Matter

      Pages 197-197
    2. Biobanks: Success or Failure?

      • Herbert Gottweis
      Pages 199-218
    3. Sharing Orphan Genes

      • Georg Lauss
      Pages 219-235
    4. Informed Consent and Benefit Sharing in Genetic Research and Biobanking in India

      • Prasanna Kumar Patra, Margaret Sleeboom-Faulkner
      Pages 237-256

About this book

Biobanks are promising instruments of biomedical research and of transnational medicine in particular. Ethical, legal and social issues associated with biobanking, however, have recently led to a more critical view on this concept. All efforts addressing these concerns have been grounded on well-established standards of biomedical ethics such as informed consent procedures, protection of individual autonomy, benefit sharing etc. By additionally highlighting the widely neglected aspect of trust, this book aims at broadening the horizon of the ELSI-debate and thus filling a gap in current research on biobanking. The contributions of leading experts and junior researchers cover a wide field of disciplines relevant for biobanking including law, ethics, medicine, public health, social sciences, philosophy and theology.

Editors and Affiliations

  • Erlangen-Nuremberg, Chair for Systematic Theology / Ethics, Friedrich-Alexander University, Erlangen, Germany

    Peter Dabrock

  • , Institute for Medical and Health Law, University of Mannheim, Mannheim, Germany

    Jochen Taupitz

  • Erlangen-Nuremberg, Chair for Systematic Theology / Ethics, Friedrich-Alexander-University, Erlangen, Germany

    Jens Ried

Bibliographic Information

Buy it now

Buying options

eBook USD 84.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Other ways to access