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Ethical Issues in Pediatric Hematology/Oncology

  • Book
  • © 2020

Overview

Editors:
  1. Kate A. Mazur

    1. Texas Children’s Cancer and Hematology Centers, Baylor College of Medicine, Texas Children’s Hospital, Houston, USA

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  2. Stacey L. Berg

    1. Texas Children’s Cancer and Hematology Centers, Baylor College of Medicine, Texas Children’s Hospital, Houston, USA

    View editor publications

    You can also search for this editor in PubMed   Google Scholar

  • Fills a vital gap in currently available literature on ethical issues in pediatric hematology/oncology

  • Presents a multidisciplinary approach to sound ethical practices necessary for effective patient care

  • Written by experts in their field

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Table of contents (11 chapters)

  1. Front Matter

    Pages i-xi
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  2. Introduction to Ethics in Pediatrics

    1. Front Matter

      Pages 1-1
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    2. Ethics: A Historical Perspective

      • Tessy A. Thomas, Perry Ann Reed
      Pages 3-18

    3. Ethical Principles in the Practice of Medicine

      • Ryan R. Nash, Mark J. Wells
      Pages 19-35

  3. The Ethics of Everyday Clinical Encounters

    1. Front Matter

      Pages 37-37
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    2. Communicating Prognosis at Diagnosis and Relapse or Progression

      • Brittani K. Seynnaeve, Scott H. Maurer, Robert M. Arnold
      Pages 39-56

    3. Managing Conflict When There’s Disagreement in Care Between Medical Providers, Caregivers, and Patient

      • Ernest Frugé, Michael Sprehe, Laura Loftis, Melody Brown-Hellsten, Courtenay Bruce
      Pages 57-76

    4. Unique Considerations for Adolescents and Young Adults

      • Deena Levine, Liza-Marie Johnson
      Pages 77-87

  4. Ethical Issues Surrounding Children in Research

    1. Front Matter

      Pages 89-89
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    2. Ethics in Genetic and Genomic Research

      • Amy L. McGuire, Stacey Pereira, Amanda M. Gutierrez, Mary A. Majumder
      Pages 91-110

    3. When Cure Is Not the Goal: Ethical Issues Surrounding Early-Phase Research

      • Bryan Sisk, Eric Kodish
      Pages 111-129

  5. Supportive Care

    1. Front Matter

      Pages 131-131
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    2. Advance Care Planning

      • Allison Caldwell, Melody J. Cunningham, Justin N. Baker
      Pages 133-163

    3. Symptom Assessment and Management Across the Cancer Trajectory

      • Melody Brown-Hellsten
      Pages 165-201

    4. Intercultural Competence and Communication over Language Barriers

      • Pernilla Pergert, Elisabet Tiselius
      Pages 203-222

  6. Correction to: Advance Care Planning

    • Allison Caldwell, Melody J. Cunningham, Justin N. Baker
    Pages C1-C1

  7. Back Matter

    Pages 223-229
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Keywords

About this book

This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers’ knowledge and experience in pediatric health care ethical issues, the text positions providers to be beneficial resources to faculty, staff, patients, and families within their institution. It presents a multidisciplinary approach to sound ethical practices that is necessary to effectively care for these patients and their families. The book reviews the principles of ethical decision-making, the unique difficulties in using children as research subjects, common ethical conundrums involved in providing end-of-life care, and general moralities of professional practice. 


Written by experts in their fields, Ethical Issues in Pediatric Hematology/Oncology is an innovative and valuable resource for clinicians, practitioners, and trainees who work in the field of pediatric hematology/oncology. 

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Editors and Affiliations

  • Texas Children’s Cancer and Hematology Centers, Baylor College of Medicine, Texas Children’s Hospital, Houston, USA

    Kate A. Mazur, Stacey L. Berg

About the editors

Kate A. Mazur, MSN, RN, CPNP
Texas Children’s Hospital
Texas Children’s Cancer and Hematology Centers  
Baylor College of Medicine 
Houston, TX 
USA


Stacey L. Berg, MD
Texas Children’s Hospital
Texas Children’s Cancer and Hematology Centers  
Baylor College of Medicine 
Houston, TX 
USA



Bibliographic Information

  • Book Title: Ethical Issues in Pediatric Hematology/Oncology

  • Editors: Kate A. Mazur, Stacey L. Berg

  • DOI: https://doi.org/10.1007/978-3-030-22684-8

  • Publisher: Springer Cham

  • eBook Packages: Medicine, Medicine (R0)

  • Copyright Information: Springer Nature Switzerland AG 2020

  • Hardcover ISBN: 978-3-030-22683-1Published: 09 December 2019

  • Softcover ISBN: 978-3-030-22686-2Published: 13 January 2021

  • eBook ISBN: 978-3-030-22684-8Published: 27 November 2019

  • Edition Number: 1

  • Number of Pages: XI, 229

  • Number of Illustrations: 11 b/w illustrations, 3 illustrations in colour

  • Topics: Hematology, Oncology, Pediatrics

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