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Engineering - Biomedical Engineering | Rare Diseases in the Age of Health 2.0

Rare Diseases in the Age of Health 2.0

Bali, R.K., Bos, L., Gibbons, M.C., Ibell, S.R. (Eds.)

2014, XXXIII, 292 p. 14 illus.

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  • Focuses on various factors associated with orphan diseases
  • Highlights the opportunities and challenges through information technologies and Health 2.0
  • Explores economic possibilities
  • Written by an international authorship with experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy
This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater.  The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine.
The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.

Content Level » Research

Keywords » Disease Data Mining - Electronic Health Records - Genomics and Biotechnology - Health 2.0 - Health Data Mining - Health Social Media - Information Management Systems - Innovative Therapies - Patient Empowerment and Advocacy - Patient-clinician Liaison - Rare Diseases - Role of New Social Media

Related subjects » Health Informatics

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