Overview
- Editors:
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Andrew N. Lin
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Laboratory for Investigative Dermatology, The Rockefeller University, New York, USA
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D. Martin Carter
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Laboratory for Investigative Dermatology, The Rockefeller University, New York, USA
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Table of contents (23 chapters)
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Basic Science Aspects
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- David T. Woodley, Scott McNutt
Pages 19-36
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- Elke Voges, Annemarie Kronberger, Rosalind A. Grymes, Eugene A. Bauer
Pages 63-69
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- David T. Woodley, W. Ray Gammon, Robert A. Briggaman
Pages 75-86
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Clinical Overview
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- Andrew N. Lin, D. Martin Carter
Pages 89-117
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- Andrew N. Lin, D. Martin Carter
Pages 118-134
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- Andrew N. Lin, D. Martin Carter
Pages 152-165
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Extracutaneous Manifestations and Their Management
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Front Matter
Pages 167-167
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- Gulchin Ergun, Robert A. Schaefer
Pages 169-184
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- Patricia J. Giardina, Andrew N. Lin
Pages 191-197
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- John J. Putnam, George. W. Sferra Jr.
Pages 198-209
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- Andrew N. Lin, Shelley R. Berson, Robert F. Ward
Pages 210-216
About this book
Because skin blisters are the initial manifestation of epidermolysis bullosa (EB), patients invariably present to the dermatologist for diagnosis and treatment. However, EB is a systemic disease whose management requires input from clinicians in virtually all fields of medicine, including pediatri cians, surgeons, dentists, gastroenterologists, hematologists, otorhinolaryn gologists, dietitians, and physical therapists, to name a few. Because EB is a rare disease, few clinicians are familiar with it, and many recoil at the pros pect of caring for individuals covered with blisters caused by a disease they know little about. For patients, insult is thus added to injury and they feel abandoned, neglected, and frustrated. One way to remedy this deplorable situation is to provide clinicians with a compact source of information de tailing the principles of EB diagnosis and treatment. This text seeks to fulfill this role. From 1986-1991, The Rockefeller University Hospital has been the co ordinating center of the National EB Registry. Supported by The National Institutes of Health, this Registry consists of four university centers* commit ted to collecting clinical data concerning diagnosis, treatment, and epidemio logy on all American EB patients. As of April 1992, nearly 1,799 EB patients have enrolled nationwide. The Registry is now in its second five-year phase of operation.
